Anissa’s Story – Post #22 – “Signs,Wonders & Waiting For Answers…

Anissa – “Sweet 16”

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07/06/83

Since Anissa was free of the severe personality change from the negative side effect of the anti-epileptic drug Tegretol, she still contended with various types of seizures for several years.  In 1984, we learned that the National Institutes of Health (NIH) in Bethesda, Maryland, was using a PET scan to measure brain activity and to aid their epilepsy research program. An appointment was scheduled for August 2nd and at that moment, her seizure activity stopped.  Was that a sign from God to let us know we were in His perfect will?

Anissa endured the 1,000 mile round trip to NIH, blood tests, EEG, long waits and visits with doctors, plus many other adjustments from her normal routine.  Yet, she had no seizures throughout a four-week span, even though her daily dosage of Tegretol was cut in half to reduce tremors. No drugs were administered to her for 24 hours preceding the tests.  It was a shock to us, therefore, when the results of the EEG indicated Anissa’s brain activity was in constant seizures, classified as absence or petit mal.  Since this was a drastic change from her other two recent EEG tests, it made us wonder if the anti-seizure medications had brought about the return of the petit mal seizures.

After these tests, however, the doctors felt that Anissa would not be a good candidate for the PET scan, because of her inability to undergo the scan while awake, and the required lengthy stay in the hospital.  The doctors agreed that it would take a real miracle to correct her condition. Shortly thereafter, NIH acquired the MRI (Magnetic Resonance Imaging) scanner. The neurologist felt it would be wise to have an MRI scan done on Anissa to determine whether the corpus callosum was thickened, damaged or non-functioning before considering a split-brain operation.

A scan was scheduled for Anissa on June 14, 1985.  The radiology results reported: The examination shows the lateral, third, and fourth ventricles to be of normal size and in normal position.  No evidence of abnormally increased or decreased signal is recognized in the brain. Since there was no evidence of structural damage, the doctors suggested that her seizures originated from a chemical malfunction in the brain.  I still wonder if the medication (Phenergan) prescribed for Anissa at 6 months of age caused a chemical imbalance.  Phenergan contains the antipsychotic component phenothiazine, which should never be given to a child under the age of two, or before the brain has fully matured.

Being constantly aware that God holds the key to Anissa’s ultimate victory, we continued to pray and seek for a breakthrough.  One day, during the summer of 1986, while ironing clothes, these words came into my mind: Make an appointment at the City of Faith for the second week in September!”  I questioned this, knowing that according to a letter dated 4/1/85 from CEO, Dr. James Winslow, Jr., the City of Faith Medical Center did not yet have a neurologist on staff.  Also, the trip to Tulsa, Oklahoma would take several days, so a final test would be if my husband was willing to go.

“Beloved, do not believe every spirit, but test the spirits, whether they are of God; because many false prophets have gone out into the world.”  

1 John 4:1 NKJV  

My first thought, then, was to check and see if they had a neurologist on staff.  To my delight, they reported that a pediatric neurologist, Dr. Liphard D’Souza, was joining their staff on August 1st.  Although Anissa was now 19 years old and considered to be an adult, Dr. D’Souza felt he could be of help and wanted to see her.  The first available appointment was the second week in September!  This confirming word caused our hopes to soar!   With expectant faith, we planned our trip, trusting in His Excellent Grace to bless our going and coming.

(Stay tuned as the search for a cure continues on my next Post!)

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

  

Anissa’s Story – Post #23 – The Power Of A Praying Doctor…

Again and again, it appears to be an unending venture in seeking a cure for my daughter.  Through the search, it is my hope that others who suffer with uncontrollable seizure activity, or are diagnosed with Lennox Gastaut Syndrome, such as Anissa, will receive helpful information.

“But in our trouble God has comforted us—and this, too, to help you: to show you from our personal experience how God will tenderly comfort you when you undergo these same sufferings.  He will give you the strength to endure.”

2 Corinthians 1:7 TLB

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Upon our arrival in Tulsa, Oklahoma and the City of Faith Medical Center, we thought it best to transport Anissa to and from scheduled appointments in a wheelchair because of seizures being so unpredictable.  She enjoyed the rides and was especially happy to be outdoors in the beautiful weather. Sometimes God answers prayers in areas we least expect, but need the most.  While many were suffering from severe allergies due to an abnormally high pollen count that season in Tulsa, Anissa showed no sensitivity to the outdoor air.

The faith-filled atmosphere that encompassed the City of Faith complex was so peaceful.  We were especially impressed with our first appointment when the neurologist, Dr. Liphard D’Souza, asked Pastor Joel Vesaner to come into his office and pray for Anissa.  Surrounding her, we all reverently joined hands in prayer.

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The honest concern that Dr. D’Souza had toward Anissa and our situation showed his heart of compassion.  For several months, her digestive tract had been upset and was making grinding noises. He recommended an enzyme tablet with everything in it.  I realized, then, this doctor knew the benefits of good nutrition.  After two days of enzyme therapy, the noises subsided. It was then we learned the medical name given for Anissa’s condition is Lennox Gastaut Syndrome.  

After getting the results of Anissa’s blood tests, there were several drugs that Dr. D’Souza wanted to try.  He handed me his 1986 Physician’s Desk Reference Manual so I could read the description of Depakote (divalproex sodium), the drug he was considering.  Since that drug is equivalent to the Sodium Valporate given to Anissa in the past, we hesitated in our decision to give Depakote a try.  But after learning the tablets were enteric-coated with less chance for gastrointestinal upsets, we gave our approval.

While it controlled the absence seizures, after Anissa ate any mildly spiced foods, she would vomit, so her diet was very limited.  It took high dosages of a combination of the drugs, Depakote, Valium, Tegretol and Tranzene to keep her seizure-free for three months.  After that time, however, reactions set in: multi-seizures returned and in addition, her hair began to fall out, sores appeared in her mouth and blood in her stools. 

Upon hearing this, Dr. D’Souza was very disheartened and said, “I’ll keep praying for her and we’ll come up with something!”  True to his word, he has phoned me throughout the years to check on Anissa and discuss various drugs that may be helpful.  Several years ago, while on a business trip to Florida, he and his wife came to our home – not as a visiting doctor but as good friends.  The following quote by Nobel Prize winner, Francois Mauriac, describes our time in Tulsa:

“No love, no friendship can cross the path of our destiny without leaving some mark on it forever.”

When taking Anissa outdoors, Dr. D’Souza prescribed a wheelchair for her protection against injury.  We followed his advice and for several years were able to enjoy the sunshine blessings of living in Florida.  I have learned that when God places someone  special in our lives, then no one can separate what has been joined together by              His Excellent Grace.

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #24 – Victorious Survivors & A First Lady’s Favor…

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While driving home from Tulsa, my thoughts turned to eight years earlier in 1978, when I had been impressed to write Anissa’s story, or at least compile the facts —   suddenly, I heard:  “Shelve Anissa’s book for a time and put together a book of victorious survivors you’ve met along the way with situations similar to your own.”  

When the Almighty God wants something accomplished, He also provides!  One of our neighbors had a daughter-in-law who often visited them and we became close friends.  Previously, she was on an editorial staff of Christian Life Magazine and had written three books.  Then one day, she felt a “nudge” to write Anissa’s story.  In 1985, the words, “Victorious Survivors Along the Way” became indelibly imprinted across her mind.  Since a year had elapsed, during which time I met other victors along the way, and by the confirming word that I heard, we had a better understanding of how to pursue the project.

“For the Lord giveth wisdom: out of His mouth cometh knowledge and understanding.”  Proverbs 2:6

We were instructed to use Anissa’s story as the lead, followed by 15 families who accepted our invitation to contribute their own stories.  It was to be a handbook of hope and encouragement for parents and other concerned individuals. We rejoiced the day when a renowned artist offered to sketch portraits from snapshots the parents had sent of their afflicted children.   

Members of Logos Life and Light Foundation prayed with us regarding a publisher and helped with the final editing.  The Board of Directors unanimously agreed that LLL Foundation should be the publishers of the book. The first printing of Victorious Survivors took place in August, 1988, and was given as a “first fruits offering” to individuals, medical centers and organizations connected with various handicaps and afflictions.  The leader for a Pastor’s Conference that took place in Washington, D. C., requested 800 copies to be given each attendee.  Believing every Pastor could benefit from the stories, the leader planned on using the book as a reading assignment during the conference.

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One year later on August 3, 1989, I answered the LLL ministry phone and was taken by surprise when I heard the voice on the other end of the line say:  “The White House.” It was “First Lady” Barbara Bush’s secretary, Cathy, calling to say that she and Barbara were both “favorably impressed” with the copy of Victorious Survivors sent to them.  They recommended for us to contact Dr. June Jordan of the Council for Exceptional Children, who then requested several copies of the book.   I could hardly believe that really happened, because the night before, I had a dream in which Barbara Bush was talking to me on the phone, saying, “I just want to let you know that you’ll be receiving a favorable report regarding your book.”

“What is faith?  It is the confident assurance that something we want is going to happen.  It is the certainty that what we hope for is waiting for us, even though we cannot see it up ahead.”  Hebrews 11:1 TLB

Here we are, 30 years later, still sharing Anissa’s journey, as well as stories of others who have experienced His Excellent Grace, in an outreach to the world that at one time seemed impossible.

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

 

Anissa’s Story – Post #25 – Major Medical Decisions And Listening Prayer = Good Results.

As a follow up of yesterday’s Post #24 and the awesome experience I had in connection with “First Lady” Barbara Bush’s compassionate heart, my prayers now go out to her beloved family in feeling the loss of her gracious life.

“For we know that if our earthly house, this tent, is destroyed, we have a building from God, a house not made with hands, eternal in the heavens … therefore we are always confident, knowing that while we are at home in the body we are absent from the Lord.  For we walk by faith, not by sight. We are confident … and well-pleased rather to be absent from the body and to be present with the Lord.”

2 Corinthians 5:1, 6-8 NKJV

Sometimes a lack of knowledge can cause those still living to suffer in their mortal body.  After exhausting all pathways of treating the seizure activity in Anissa with anti-epilepsy drugs, we were advised to consider a surgical operation of her corpus callosum.  This procedure, known as split-brain, would separate a broad band of nerve fibers that joins the two hemispheres of the brain to keep a seizure isolated and from spreading throughout her brain.

Upon hearing favorable reports from other parents who took their child for such an operation to the Augusta Medical Center in Georgia, we decided to take Anissa for an evaluation.  In 1987, an appointment was made for her with the neurosurgeon, Dr. Donald King. (Since one of his patient’s story was in our book, Victorious Survivors, he had previously ordered 15 copies to share with others.)  Therefore, Dr. King was sensitive to our need to work closely with a physician who is compassionate to our needs and willing to try various types of therapy.  It was his opinion that Anissa would not be a good candidate for the corpus callosum surgery because of her combative behavior.  He told us that in the meantime, he’d keep her name on his special list for any new experimental drug program that might be beneficial for the types of seizures she was having.

Because of the extreme behavior problems that Anissa experienced after the severe drug reaction just several months before, Dr. King prescribed Mellaril (thioridazine HCI), in minute doses, in hopes to correct her loud screaming, explosive excitability and impulsivity.  After several doses, we realized she was making the same kind of “pointless” motions which had originally alerted us to the reaction she had at six months of age to the drug Phenergan. After researching the chemical makeup of those two drugs, we were shocked to learn that both contained the same antipsychotic component – phenothiazine, which should never be given to a child under two years of age!  It was then we understood that Anissa’s brain suffered seizures as a result of the drug causing a chemical imbalance rather than structural damage.

“When wisdom enters your heart, and knowledge is pleasant to your soul, discretion will preserve you; understanding will keep you, to deliver you from the way of evil.”  Proverbs 2:10-12 NKJV

This knowledge that I gained only made me more adamant in finding a formula that will counteract what that antipsychotic drug might have caused in the chemical balance of Anissa’s brain.  Evidently, God wants the same results and could be the reason why we are recipients of “open doors – signs — wonders” through the power of His Excellent Grace.

 

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

 

 

  

Anissa’a Story #26 – Road Trip & Awaiting The Anointing…

god is my healer


By the year of 1988, we had once again pursued all avenues of medical help in search of healing for the uncontrollable seizures that 21-year-old Anissa battled against. Since surgery was not recommended, we knew it would take a miracle breakthrough supernaturally or discovery of new anti-seizure remedies.

The following three years greatly challenged our faith but prayerful warriors helped us to keep a proper focus.  The only positive value I have seen from a violent seizure is an altering of Anissa’s brain chemicals when no medication works.  One time, I prayed she might have the kind of seizure that would change things when she was so out of control with a loud voice and very little sleep.  Our nerves were worn thin and I cried out desperately to the Lord for an answer. A vision appeared before me of two arms with outstretched hands surrounded by a glorious light coming out of heaven toward me.

Several hours later a Pastor’s wife called me regarding a meeting they were attending in Crystal River, directly across the state of Florida from our home.  She explained that while in their time of prayer that morning, a vision of our family kept coming before them. The Pastor asked if we could bring Anissa to the meeting to have the minister, Dave Roberson, pray for her as there was a strong healing Anointing upon him.  In desperate need of a breakthrough, my husband and I put everything on hold, pushing past the speed limit to make the evening meeting. To this day, I can still hear Anissa’s non-stop loud voice during the 2 ½ hour drive.

Once there, I stayed in the car with her while my husband attended the meeting until the time was right for me to go in alone when people would be going forth for prayer.  As I waited in line with others, the minister was going to everyone but me, until finally I was standing alone. Then coming to me he said: “You probably wonder why I kept passing by you, but the Spirit of Prophecy was upon me and all I could see over you was Healing.”  After explaining our situation and Anissa’s diagnosis of Lennox Gastaut Syndrome, he looked over to our Pastor and his wife asking them if this was the girl they had mentioned to him.  After nodding ‘yes’, Dave Roberson then began to prophesy:  “The Lord has shown me that you have taken your daughter to all the best medical doctors, as well as noted healing ministries, but the Anointing has yet to be given for this kind and it isn’t that far off!”  He then wanted me to bring Anissa into the meeting for the elders to pray over her.

“But Jesus took him by the hand, and lifted him up; and he arose.  And when he was come into the house, his disciples asked him privately, ‘Why could not we cast him out?’  And he said unto them, ‘This kind can come forth by nothing, but by prayer and fasting.’” Mark 9:27-29

 Afterwards, the loudness of voice stopped and we had a peaceful drive home with quietness in Anissa during the weeks that followed – another experience of His Excellent Grace!

   To contact Anissa’a mother email her at blawyerlogos@bellsouth.net

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To take a tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #27 – Discerning Doctors…

god full of care

Reaching the age of 25 was a victory for Anissa, especially considering how seizures had increased in volume and velocity.  “Red tape” had blocked the release of Felbatol (felbamate), an anti-seizure drug for which she had been approved the previous year.  Her neurologist hoped to obtain it as a “compassionate drug” rather than experimental, to avoid the strenuous testing otherwise required by the FDA, which could worsen Anissa’s frail condition.

Starting felbamate therapy was further delayed when it became apparent Anissa needed her wisdom teeth removed.  This required general anesthesia with monitoring of seizures during the operation (x-rays, cleaning, extractions, etc.), which had to be done at Shands Hospital in Gainesville, Florida.  Throughout the summer of 1992, we met with the four doctors in charge – an oral surgeon, pediatric dentist, anesthetist and neurologist. In order to keep Anissa strong enough to survive the operation, we took extra precautions, protecting her from colds and viruses.  The timing of the operation was uncertain, due to coordinating the schedules of the doctors, but finally the date was set for November 18th.

Evidence of answered prayers occurred the day before surgery when all the preoperative tests were done from 8:30 a.m. until 5:00 p.m.  Anissa had blood work, urinalysis, chest x-rays, several mouth exams, blood pressure and pulse rate, a general exam and lots of waiting, while sitting in a wheel chair the entire time.  She did not have her regular naps, or receive her food and medication on schedule, yet only experienced one mild tonic seizure. She was very happy, peaceful and cooperative – truly a miracle!

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We knew Anissa was in good hands when Charlotte White, the oral surgeon, came out from the operating room to discuss with us what the x-rays and exam revealed:  Anissa’s mouth was very healthy with no cavities, abscesses or gingivitis, but two of the wisdom teeth were impacted and the other two were shoving some teeth and could present future problems.  Then, looking straight at us, Dr. White asked, “Are you Spirit-filled?”  After receiving our affirmative answer, she replied, “So am I.”  Another reason for the peace that passeth all understanding we were experiencing!

 “For He [Christ Jesus] Himself is our peace, who has made both one, and has broken down the middle wall of division between us.”  

Ephesians 2:14 NKJV

After the operation was over, Dr. White explained that gauze was placed in Anissa’s throat to prevent the blood from going into her stomach, as well as a special type of disintegrating sutures and gauze-like packing to alleviate dry sockets.  She hoped it would keep Anissa from vomiting – and it did! Even with the strong anesthetic, her EEG showed seizure activity in the brain but she did not outwardly convulse.

During the following week, Anissa required one-on-one supervision night and day to restrain her hands from digging at her sore lips and gums.  Puree foods were a steady diet for a season. At the final checkup, she was given a clean bill of health!

We survived the great challenge due to the many faithful intercessors keeping us in prayer before the Lord and overshadowed with His Excellent Grace.

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

 

Anissa’s Story – Post #28 – Medicine Shift – Watching All Things Work Together…

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After the removal of Anissa’s wisdom teeth, the following year in June of 1993, she was approved for the experimental program to begin Felbatol (felbamate) therapy.  She ended up having to go the least desirable way rather than embarking on the “compassionate” program, which we had preferred.

Then began the ordeal of withdrawal from her previous medications of Phenobarbitol, Valium, Tegretol and Tagamet.  However, within a short period of time, the mental alertness that Anissa exhibited encouraged us to persevere through the rough times of “addictive” withdrawal symptoms.  During a two-week period, she experienced 90 multi-type seizures that could easily have ended her life if left to fend for herself.

For accurate evaluation, the neurologist had also prescribed our purchase of a camcorder to video tape all the types of seizures manifested during a two-month period.  Shortly thereafter, the videos were used in helping others to recognize various types of seizures, especially for caregivers who worked with such individuals. This, of course, was before people had access to the Internet — WOW!  What a blessing it is!!!

After one month of only Felbatol therapy, Anissa was seizure-free for a consecutive period of 21 days – the first time in seven years to be free for more than one or two days per month.  Since Felbatol was experimental, the drug company set regulations that required frequent blood tests and a specific dosage, stronger than was best for Anissa. Her digestive system became very irritated, unable to keep food or medicine down.  Seizures returned and on October 4th, the neurologist said to get her immediately to the hospital.

After a five-hour wait in the hospital emergency room, she was given an injection of Reglan (metoclopramide) to counteract her violent upchucking and nausea.  A positive side effect of Reglan was that shaking-palsy symptoms of Anissa’s head and upper torso stopped!  (Normally, this drug can cause a side effect of tremors and lower the threshold for seizure activity, exactly the opposite of the effect it had on her.)  She was then prescribed a very small dose of Reglan which gave her an excellent appetite and due to the cessation of the shaking, Anissa was once again able to feed herself.  By the time of her next checkup, she had gained seven pounds within two months. Still, seizures were manifesting daily which required additional therapy.

Shortly after Anissa’s flare-up, Felbatol was approved by the FDA and became available through prescriptions.  The neurologist was no longer required to comply with the “experimental drug” restriction and could reduce her dosage.  Prior to Thanksgiving, at the onset of a family trip to West Virginia, a new regimen of drug therapy was begun, adding Valium (diazepam) to the Felbatol and Reglan.

“And we know that all things work together for good to them that love God, to them who are the called according to His purpose.”

 Romans 8:28

 The medication change caused Anissa to be in a more docile state that enabled some quality time with her grandparents.  It had been over two years since we could visit with our family and grandchildren. A rare treat was being able to have Anissa join with us at a restaurant.  We enjoyed first hand how things work together for good through the power of His Excellent Grace.     

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

 

Anissa’s Story – Post #29 – Watching For The Next Open Door…

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On August 1, 1994, the FDA recommended suspending use of the anti-seizure drug, Febatol (felbamate), since it had been linked to ten cases of aplastic anemia – a rare and often fatal condition.  In many ways, Anissa appeared to be better on the drug but her neurologist did not feel it was worth the risk, so it was discontinued. Several new drugs had been released that looked promising for controlling seizures.

Neurontin (gabapentin) was added to Anissa’s medications, but after two weeks of the drug combination, it became evident that Neurontin was certainly not promising for her, so it was deleted.  Her severe adverse reaction had created a series of seizures during which bloody saliva drained from her mouth.  We thought she bit her tongue only to later discover that two left, lower molars had fractured and crumbled, breaking at the surface gum line.  

Because of so many drugs taken to alleviate the seizures, one destructive side effect was the pitting of her teeth, which caused them to be fractured during a hard seizure.  Not visible to the naked eye, decay had developed within the teeth. Because of Anissa’s need to be anesthetized, this required another trip to Shands Hospital. Praise God, we were blessed to have the same sweet dental surgeon and team as in 1992, when Anissa’s wisdom teeth were removed.

This time, she had four left molars extracted, along with five restorations.  Her EEG showed none of the seizure activity that had previously been seen while she was deeply sedated.  Therefore, we concluded that Felbatol must have had a positive effect in helping to control seizures. Anissa’s gums and mouth healed quickly, but evidently the chemical balance of the neurotransmitters in her brain was jolted from the anesthesia, as nothing seemed to work the same thereafter in controlling the seizures.    

We have learned that when one door closes, God opens another door.  Our hopes were next on a promising new drug, Lamictal (lamotrigine), that Anissa was scheduled to receive through the University Hospital at Gainesville, until we discovered it would require a lot of testing.  We knew her frail condition could not tolerate such an ordeal, so we decided to wait until it was readily available.

IMG_1153[3461] Anissa - Frail '96

The following year, in May of 1995, an exam revealed that Anissa had an erosion of the opening into her stomach from the esophagus, causing many digestive upsets.  Prilosec (omeprazole), corrected the condition but to our dismay, it caused a sequence of much harder and more dangerous seizures.

The drug, Lamictal, became readily available in October, of which Anissa was able to tolerate small doses without digestive upset.  She reacted very similar to that of Felbatol concerning alertness. Her sleep became at least 90% better, as well as less seizure activity.  However, when the dosage was increased, Lamictal caused greater tension in her muscles, she was unable to relax and suffered from nausea and reflux.  In order to give Anissa the adequate dosage required for better seizure control, her anxiety level increased considerably, thus defeating the purpose.  As with Felbatol, the ill side effects reduced the benefits.

During an appointment with the neurologist in Melbourne, Florida, he indicated that Anissa suffers from the “worst-case” type of seizure disorder.  My response: “I sure would like to know more about the brain!”  His quick reply: “So would I!”  

Much of our learning has been by trial and error.  Of course, we will not allow any drug with like components contained in Phenergan, such as the phenothiazines, to be used for Anissa.  The adverse reaction she suffered from Neurontin and Gabitril (tiagabine), gives us cause to question drugs affecting the GABA receptor in her brain.  

“Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.”  

Philippians 4:6-7 NKJV

Patients such as Anissa are dependent upon decisions made by others.  As legal guardian for the well-being of my daughter, prayer and a healthy diet is a necessity!  Searching the Internet for any new therapy can also be helpful.  But to persevere, it takes the guidance of the Holy Spirit and His Excellent Grace!       

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a tour of the healing center go to http://www.wellspringhealingretreat.org

  

Anissa’s Story – Post #30 – Considering It All Joy…Even In Tribulation.

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On Anissa’s 29th birthday (1996), there was still no reprieve of seizures – frail in appearance, yet a strength that would always confound our human reasoning.  Our desperate prayers for relief of the severe hyperventilation and hyperactivity that Anissa was experiencing day in and day out, caused us to search for a solution.

 Research led us to a medical specialist in Miami who had considerable success in his practice using auriculotherapy, an electrical stimulation of the ear.  An appointment was scheduled for Anissa. When the doctor performed this therapy on her, the hyper afflictions came to an immediate halt. Because the calming effect was so noticeable, the doctor recommended that we continue the therapy at home with a compact, state-of-the-art version of the machine.  This unique instrument has a special probe to effectively detect and stimulate important nerve junctions in the body. Clinical studies reveal that it is capable of improving blood flow, thereby improving vitality, reducing pain and accelerating tissue healing.

In order to purchase the Stimplus instrument, I first had to learn the technique.  That required my attending a two-day seminar near the Miami airport, where Anissa and her dad could enjoy a perfect view of air flight activity from our hotel room.  After the hotel security guard was notified of loud voices coming from our room, he showed up at our door that night to check on things. Once he understood our predicament, we were told to try and keep the volume low.   Oh, how many times we prayed for that very thing! Not wanting to disturb others, we knew that in the future there would have to either be a change with Anissa, stay at home or have a sound proof room.

The stimulator proved valuable to the wellness of our family – except for Anissa.  The high-pitch beeping, (generated “automatically” by the portable version of the device), on the edge of her ear, created in her a sensitivity to the noise which she violently resisted.  The large machine used by the physician in his office did not generate a noticeable noise, as it had a connecting line from the point of contact to the actual equipment located across the room.  We were grateful of being able to experience first-hand the validity of auriculotherapy therapy. With Anissa, it is not mind over matter – it either does or does not work! Scientific research has proven that cranial electrical stimulation can be a safe, alternative method of healing.  Since seizure activity is a type of electrical discharge in the brain, such stimulation must be regulated to avert negative results. At this present time, much research is being done with Deep Brain Stimulation which delivers controlled electrical pulses to a specific target in the brain.  

“Therefore, having been justified by faith, we have peace with God through our Lord Jesus Christ, through whom also we have access by faith into this grace in which we stand, and rejoice in hope of the glory of God.  And not only that, but we also glory in tribulations, knowing that tribulation produces perseverance; and perseverance, character; and character, hope. And hope does not disappoint, because the love of God has been poured out in our hearts by the Holy Spirit who was given to us.”

 Romans 5:1-5 NKJV

With so many disappointments throughout the years, the main thing that keeps my hope alive is the Word of God and memories of His Excellent Grace!

 

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #31 – God’s Silver Lining In The Midst Of Trials…

grace in trials

In February, 1997, an MRI scan of Anissa’s brain and upper spine was scheduled at Holmes Regional Hospital in Melbourne, Florida.  The radiologist read the scan as normal; however, the neurologist thought there was a slight atrophy (shrinkage) of Anissa’s cerebellum.  [Just recently I have learned that the anti-seizure medication, Tegretol (carbamazepine), which Anissa has taken since 1982, can cause atrophy of the cerebellum.]   If so, this could possibly explain why previous remedies became futile. For example, we had taught her to say aloud, “head – stop shaking – Jesus name,” and her head would stop shaking.  But then came the time when it no longer worked.  We have learned that if the root cause is a physical malfunction, a therapeutic correction may be necessary before prayers are answered.

During that hospital visit, a nurse had given us the name of a dentist in the Palm Bay area who worked with patients like Anissa —“just in case we should sometime need a good dentist.”  What a blessing that turned out to be!  In September, one of Anissa’s molar teeth fractured due to a hard seizure and tightly clenched jaw.  Because of the greater force and increase of seizures, it was again necessary to put her under general anesthesia for dental work.

At that time, there were no dentists in our area who would work on her teeth.  It certainly was much less stressful going to the Palm Bay Hospital rather than Shands Hospital in Gainesville.  Finally, on the day after Thanksgiving, the tooth was extracted. The doctor was “amazed” as to the excellent condition of Anissa’s overall oral hygiene for all she had been through.  The restoration period from her oral surgery was more of a challenge this time. Within three days, she battled a cold and sinus infection that required antibiotic treatment for her total recovery.

Sinus flare-ups and headaches always seemed to be “a thorn in the flesh” that required medication to offset any major health problems for Anissa.  Her neurologist had verified how “climate changes can affect seizure activity,” which we had noticed when sporadic temperature changes were drastic.  As we questioned the doctor further, he explained that the changes involve the nervous system which, in turn, may trigger seizure activity.  Looking back over the records of Anissa’s daily seizures, it is interesting to note that whenever she was on an antibiotic for any infectious condition, such as sinusitis, she would be almost completely free of seizures. The negative thing about that therapy – she would wind up with Candida, a yeast infection that required additional medicine, and to our dismay, more seizures.     

After several weeks of waiting for a bill of service from the Palm Bay Hospital anesthesiologist, we finally got in touch with the one who performed the procedure to inquire why we hadn’t received a bill.  He replied, “Because I didn’t send one!”  He went on to explain how Anissa’s story deeply touched his heart.

“… the things which were sent from you, a sweet-smelling aroma, an acceptable sacrifice, well-pleasing to God.  And my God shall supply all your need according to His riches in glory by Christ Jesus.”

Philippians 4:18-19 NKJV

We are so grateful for such giving and caring individuals who go beyond the call of duty – definitely an extension of His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org