Anissa’s Story # 2 – God Shows Up With Grace As Joy Comes In The Morning.

joy in the am

After a long night of contemplating the what ifs and the whys of our situation, we met with Anissa’s doctor the next day. It was a breath of fresh air and an amazing relief to hear the doctor say :

“It took a hand higher than ours” he admitted. “Your daughter’s kidneys are functioning and her fever is gone. We tried everything we knew to get her kidneys to function. Nothing worked. You can thank the good Lord that you still have a daughter.” Even the nurses were excited over the good news that Anissa had wet in the middle of the night, the first time in several days. Her eyes were open and even her fingernails had returned to a normal color. Everyone acknowledged that Anissa’s improvement was miraculous, there was no other explanation.

We firmly believed that this miracle was the result of the prayers of many. I knew also that my prayer to God in the middle of the night had been answered. I knew in my heart that God had another plan for Anissa’s life which was not to include a lifetime of institutions, but a special agenda that the Lord had for her. On that same day February 27th, 1968 Anissa was baptized in a small out-of-the-way hospital room. What a different outcome for this day than it could have been had God not shown His grace!

We still realized that as the doctor said, Anissa would suffer from the rare form of petit- mal epilepsy called myoclonic seizures. At the time many people suggested we file suit against the doctor but we decided that it was not his fault that Anissa had such a reaction to the drug Phenergan. However, it was found by the FDA a short time later that this drug should never be given to a child under two years old due to the immaturity of the brain.

Next up the doctor recommended to us that we admit Anissa in a research study on this type of epilepsy that was underway. A noted neurologist from New Zealand, Dr. Fritz Dreifuss was at the University of Virginia hospital leading the study. It gave a us a ray of hope we so needed. The next day we drove to the hospital and entered Anissa in the research program.

At that time we owned a motel and had plenty of work to keep us busy, which was probably a good thing because of the long week that Anissa was gone. We were also glad it was not the busy tourist season since the waiting time was unpredictable concerning hospital visits.

We continued on to search out anything we could about myoclonic seizures and even met some parents of a boy who had the same type of epilepsy, in his case requiring institutionalization .

Our trips to see Anissa were not very hopeful. Since various drugs had been tried, along with injections of the hormone ACTH, with no positive results, Dr. Dreifuss gave us a dismal prognosis. As a preventitive treatment against other types of seizures, Gemonil ( metharbital) was prescribed.

As a matter of fact, he suggested we put Anissa in an institution and go on with our lives.

Clinging to my faith that God had a special plan for Anissa’s life since the miracle of her kidneys, I believed the only chance for her survival would be in our home. Dr Dreifuss questioned whether I could handle the continuous 24/7 care necessary for a brain- damaged, hyperactive child. I thought of the many stressful events experienced while balancing family and business. I quickly stated that if I was able to keep my sanity during the 14 years of operating a motel and restaurant, than I could surely handle Anissa.

The doctor then indicated that if we planned on keeping our child at home, it would be best to live where she could be outdoors most of the time. Little did we realize the trials and frustrations that were ahead !But in our times of weakness, our fervent prayers to God enabled us to receive the necessary strength to carry on, experiencing a taste of His excellent grace.

To contact Anissa’s mother email blawyerlogos@bellsouth.net

To visit the website go to http://www.wellspringhealingretreat.org

Anissa’s Story # 3 – Weary – But Trusting In His Grace.

praying stick

Following Anissa’s release from the university hospital, seizures became more frequent regardless of various drugs added, including Valium (diazepam). She was then put on a Ketogenic (High Fat) diet. After five weeks without a spell, she suddenly had a violent reaction. While drinking the heavy cream mixture, it expulsed with great force from Anissa’s mouth. It reminded us of seeing water spouting from a whale.

Seizures returned and since her health was deteriorating, the dietetic therapy was discontinued. Allergies, along with sinus infections, seemed a constant battle. We were pushed into many avenues of healing that would never have been considered if it hadn’t been for our desperation to keep Anissa from being institutionalized.

When she was 3 1/2 years old, our nerves were beginning to frazzle. So one day we made a spur-of-the-moment decision to close the motel for a few days and head for Florida. While the business had been a priority in the past, now Anissa’s health and our sanity was what really mattered. An elderly couple who were frequent guests at our motel had invited us for a visit where they lived in Ormond Beach during the winter months.

The time in Florida was wonderful! Our son loved the ocean and Anissa was much better. Remembering what the neurologist had said about her being better off where she could be outdoors, we decided to move. Within two months’ time, we sold our motel-restaurant. We purchased a home one block from the ocean in Ormond Beach and moved in July, 1971.

WalkingB&V Beach for email

Being outside in the ocean air improved Anissa’s physical health but the seizures continued. Even so, she attended the Rainbow School for the Retarded in September. However, she had a difficult time adjusting. The sound of my little girl crying and screaming made it difficult to leave but because of the opinion of experts saying that she would adjust and needed the school, I persevered. Later, when the school psychologist met with me, she explained that Anissa was unable to adapt and would do best on a one-to-one basis. One day when a volunteer Catholic nun was present, Anissa was drawn to her in a positive way, just wanting to sit on her lap.

As seizures worsened, the school would call for me to come get my daughter. One teacher suggested that we take Anissa to a medical doctor who specialized in diets, using the process of eliminating certain foods to detect an allergy or toxic reaction. At first, while on vegetable juices, Anissa improved drastically but after the third day she began acting like a starved animal, grabbing other children’s food at school and eating things not meant for human consumption.

Realizing Anissa would not be able to continue in school the way she was, the teacher then recommended a chiropractor who might be of help. That was an unfamiliar avenue of healing so we gave it prayerful consideration. Around Thanksgiving time, Anissa began having more grand-mal seizures. We decided to try chiropractic therapy and immediately there was a noticeable improvement in her speech, with less hyperactivity and seizures. Once again we were hopeful. However, westerly winds hit our area, causing a high pollen count of ragweed and other air pollution. These winds lasted for several weeks and instead of progressing, Anissa grew steadily worse.

anissa2

By Christmas she was unable to talk, comprehend or even recognize us. She lost control of her bladder and bowels and was having 15 -20 grand-mal and over 200 lightning seizures daily. She wanted only to be held and to lay her head down. She was confused and walked into objects as though blind. By January, 1972, she was unable to walk or talk.

Many times I cried aloud to the Lord, “Heal this child and I’ll do anything You want!” Fear now had a grip on me. The more I read on nutrition, vitamin and herbal therapy, I worried that I might be upsetting Anissa’s metabolism rather than stabilizing it, as I attempted to bring her seizures under control. After hearing about other epileptics being healed while undergoing therapy at the Spears Chiropractic Hospital in Denver, Colorado, I began to hope that such daily therapy would provide answers for our child. Also, my husband could not stand to see me so exhausted and said that if things didn’t change, Anissa would have to be institutionalized. Remembering my earlier prayer regarding such, I felt Spears was my only ray of hope left.

grace 2

Once again we expected to experience our Lord’s excellent grace.

To contact Anissa’s mother email blawyerlogos@bellsouth.net

To visit the ministry website go to http://www.wellspringhealingretreat.org

Anissa’s Story # 4 – God Does A New Work In Both Mom And Daughter!

Because of Anissa’a vegetative state, she had to be fed and cared for like a newborn baby. My only consideration was getting her to Spears hospital in Denver. Everything seemed to fall quickly into place. The necessary arrangements were made for the flight, as well as the hospital. My parents had already planned to spend the winter in Florida and were willing to stay with my husband and our son.

In mid-January 1972, I boarded a plane with my daughter, whose eyes by that time were covered with a dull film. As I looked out the window of the plane and saw my family waving goodbye, I suddenly felt so alone. Though I tried to overcome the feeling, I was painfully aware of the awesome responsibility for Anissa and the unknown path that lay ahead.

I was relieved when we finally checked into our room at Spears, but disappointed to learn that the pediatric ward had been closed down since we made our original plans. I was hoping for a time of respite with nurses caring for Anissa. The following morning she underwent a thorough examination with blood tests and X-rays. The next day we met with the hospital administrator, who explained in detail the results of the tests:

“A brain malfunction such as Anissa’s does not readily respond to therapy. It takes at least two weeks to know whether or not the skull-molding technique would be beneficial. Her X-rays show enormous pockets of intestinal gas, the size of an adult’s, which could be causing her pain and discomfort.”

A therapeutic program was to start the following day but he warned me not to get my hopes up too high for the brain malfunction of Anissa to be fully corrected by therapy. Discouragement tried to take control of my heart as the dismal report played over in my mind. I felt the need for fresh air. The outdoor temperature was an unseasonably 68 degrees. Since I had only winter clothing with me, I decided to head for a shopping area to purchase a lightweight blouse as it was extremely warm in the hospital. Carrying my 4 1/2 year old daughter did not seem a heavy burden until the 6th block. Several blocks later I noticed a “SALE” sign in the window of Ruby’s Fashions.

Once inside, I noticed that the blouses were of a higher quality than I needed, so I started to leave. The owner, Ruby Nikaido, had inquired about Anissa’s condition and also suggested a discount store close by for the type of blouse I needed. As I took hold of the door knob to leave Ruby asked me if they could pray for my daughter. Stunned momentarily by her request, she asked again if they could pray for Anissa and I replied “Well I am afraid it would take a miracle.”

In the same store at that time was Gladys, a sales lady and also Vern Howell, a minister and president of “Acts Fellowship”- a ministry where the miraculous was commonplace. He just happened to stop by that day. I sat Anissa upon the store counter and they lay hands on her while praying for a miracle. Their sincere prayers touched me deeply as tears flowed freely. Afterward Vern offered us a ride back to the hospital for which I was most grateful. He waited while I got Anissa diapers and a cool blouse for myself.

gods healing grace

On the drive back to the hospital, Vern asked “Have you ever said the sinner’s prayer?” I replied “Well, I pray a lot and I belong to a Methodist church.” He then questioned, “Would you like to have Jesus as your personal savior?” I said “I believe in Jesus.” Then Vern asked “Would you like a closer walk with Him, to know Jesus personally? Would you repeat a prayer after me?”

I decided to do so but when it came to the part of the prayer where I was to say “I am a sinner” it was as though the words were stuck in my throat and did not want to come out. Determined, I repeated after him “I am a sinner. I’m sorry for my sins. Forgive me Lord Jesus, cleanse me and be the Lord of my life.”

At once I felt as though a great burden had been lifted from me. As I left Vern’s car and walked into the hospital, I actually felt different, both physically and mentally. In the morning, Anissa was more alert and the dull film had lifted from her eyes. She began her first therapy session and by the afternoon she wanted to walk and began to speak words clearly. By the end of that day there had not been even a hint of a seizure. The following day she was outside running, even trying to catch soap bubbles.

Three days later she tried to ride a tricycle and still no seizures. During my stay at the hospital, I learned to perform various methods of therapy that would be beneficial to her overall health.

One day Ruby visited us at the hospital. The Holy Spirit had directed her to explain to me the meaning of new birth, gifts of the Holy Spirit and the blood of Jesus. Though I believed in God, daily Bible reading was not a part of my life, but suddenly there was a strong desire to do so. I really began to look forward to Ruby’s visits and prayers, since many questions were running through my mind as to what Anissa and I had experienced after our day at her “fashion” shop.

Little did I know how greatly I would be depending upon God’s excellent grace in preparation for the ministry God had for Anissa and me that was soon to begin.

To contact Anissa’s mother, email blawyerlogos@bellsouth.net

To go to the ministry website- http://www.wellspringhealingretreat.org

Anissa’s Story # 5 – The Good Doctor & The Great Physician

anissa5

With Anissa acting so normal and not one hint of a seizure throughout the week of therapy at Spears Hospital in Denver, along with the prayerful visits of Ruby Nikaido, I wondered if God had performed an outright miracle, or if the seizures had stopped as a result of the therapy. My longing was to go home so my family could see the miraculous change in Anissa. Also hospital bills were a great concern – yet, I had a fear of leaving there when she was making such great progress. At that moment my security seemed to be in the therapy she was receiving. Not wanting to make the same mistake I made previously when Anissa was 6 months old, putting too much confidence in a doctors prescribed therapy, I decided it was time to put all my trust in God.

“Oh God,” I prayed, “please give me a sign that I may know whether to stay for another week of therapy or go home.” That sign came immediately after her next skull-molding therapy. Anissa experienced a seizure that was different from any type of spell she’d ever had in the past. I interpreted it as God’s way of telling me that it was not the therapy that had stopped the seizures. I knew it was miraculous and that we were not to stay another week but return home and share everything that had happened to Anissa with my family. This different type of seizure did not disturb me since there was no doubt in my mind that God was in control. I had such peace and didn’t even question Him.

Ruby was so gracious to take us to the airport and even waited while we boarded the plane. She prayed with us, instilling in me the confidence that God would meet our needs. She also brought puzzles and books to keep Anissa occupied on the long flight home. Through Ruby’s example, I learned how important it is to obey the Holy Spirit. One particular point she made had a strong impact on my faith throughout the following years: “Anytime God wants you to do something for Him, He will babysit Anissa.” This has proven to be a true word numerous times!

Anissa was extremly good on the flight home and I felt renewed physically, mentally, and spiritually. Upon our arrival at home, our family, friends and neighbors were surprised and excited to see Anissa looking so normal and healthy. She was now able to run, walk and talk and was free of the lightning seizures.

Shortly thereafter, my husband and our son experienced the power of God while attending a seminar where evangelist Frank Marzullo taught on the Pentecostal movement in the Catholic church. It was a miracle to see Anissa sit quietly for several hours during the entire service. Afterwards, the evangelist and team intercessors prayed over her. She was then set free of all seizures and began adding new words to her vocabulary.

Two months later my husband’s parents visited us and went to Busch Gardens with us. The ride through the animal kingdom in an open tram must have triggered Anissa’s allergies, causing abnormal spastic-like movements. Evidently the extreme heat, high humidity, blooming flowers and animal dander was too much for her immune system. To our dismay she suffered a relapse and soon was having full seizures, which was to become a thorn in the flesh.

In hopes to alleviate negative thoughts regarding Anissa’s healing, I sought the Lord for answers. He answered through an encouraging letter from Ruby, confirming that God was working in our situation. She shared how a fearful thought had crossed her mind:

“What if I had not obeyed God? Would Anissa have missed out on her miracle?” She wrote, “I had such an Anointing come upon me when you started to walk out { of the dress shop } and the Lord said ‘Pray for the little girl’. I thought why do I have to? And He said again ‘Pray for the little girl.’ It scared me when you came back that Friday afternoon when I saw what I saw with my own eyes. Anissa walked in so tall and looked me straight in the face. I looked at her and thought to myself, its the same little face, so alert and so sweet, same hair and same haircut. I looked at you. It’s the same mother. Yes – It’s them. And after you told us all that was happening to her, I don’t have words to explain. A thousand things went through my mind. Now I know what a miracle is. I was seeing one, and God is on the throne, and what Jesus said in the scriptures is true. He is real and alive”

jesus healing hand

Had Anissa been totally cured in Denver, perhaps our family would not have had the spiritual experience of learning who God is and growing in the fruits of the spirit. In the years ahead, whenever ultimate victory seemed out of our grasp, we learned that barriers are obstructions that are not necessarily impassable but can be made possible by God’s excellent grace

To reach Anissa’s mother email blawyerlogos@bellsouth.net

To visit the ministry website go to http://www.wellspringhealingretreat.org

Anissa’s Story Post #12- “Extreme Circumstances – Tests Of Faith”

Having Anissa free of seizures for an entire year enabled her such freedom to run, play and learn. So, when seizures returned, due to the flu she contracted while at school, our faith was sorely tried. The unpredictable effects of the seizures required someone to be with her at all times, whether awake or asleep. It was during this time that several new drugs for epilepsy were approved by the Food and Drug Administration (FDA), bringing new areas for us to explore.

After the second dose of the drug, Clonopin (clonazepam), Anissa went wild, kicking, screaming and thrashing her arms to strike anything that moved. It was necessary for us to physically restrain her until such actions subsided.

When a drug alleviated one type of seizure, other types would manifest. Behavior problems, fearfulness and confusion resulted. Another example came when Mysoline (primidone) was given to her on a trial basis. One day, I heard Anissa’s terrified voice coming from the bathroom. Rushing in, I found her standing on top of the toilet seat looking around in a bizarre state of confusion.

Whether from the drugs or the seizures, only God knows for sure, but it became increasingly difficult to cope with Anissa’s behavior. She became self-destructive, pulling out her hair, picking out her toenails, etc., and in sudden bursts of rebellion and anger destroyed anything in her sight. The perverse behavior became so magnified that, in comparison, the seizures now seemed minor.

Whenever Anissa accompanied me to a store, I found myself thinking that it would be easier if her physical features pointed out to others that she was mentally handicapped. By the “dirty looks” I sometimes got, I realized that to a casual observer she must have appeared to be just a “spoiled brat.” The words that Anissa’s neurologist spoke years earlier kept coming to my mind, that she would require very strict discipline — to the point that others not understanding the situation would consider the discipline abusive.

faith stronger than fear

My faith was challenged over and over again. I had to overcome the fear of taking Anissa out in public and also stop worrying about what other people might think. I learned from experience that when I allowed fear to overpower me, it didn’t take long for Anissa to win the battle! Therefore, I made up my mind that even if she needed physical restraint to the point of my actually holding her down on the floor while in a store to keep her from destructive behavior, then I would do so. The test came while grocery shopping! I laid her on the floor, hovered over her, fervently praying in quietness, as I attempted to shut out the glare of the people. From that day on, when out in public, she listened without requiring such severe restraints.

“And Jesus answered and said to them, ‘Have faith in God.’ For assuredly, I say to you, whoever says to this mountain, ‘Be removed and be cast into the sea,’ and does not doubt in his heart, but believes that those things he says will come to pass, he will have whatever he says. Therefore I say unto you, whatever things you ask when ye pray, believe that you receive them, and you will have them.”

Mark 11:22-24 NKJV

The Lord had given me the courage I needed to face the giant of fear, reminding me of the Biblical account when David faced Goliath – he believed God for the victory. During the past ten years of Anissa’s life, I had witnessed over and over again His Excellent Grace, thus enabling me also to believe for a victory!

To contact Anissa’s mother email blawyerlogos@bellsouth.net

To take a virtual tour of the retreat center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post # 13 – An Invitation To A Divine Appointment …

Gods invitation

During those difficult seasons for Anissa in the years of 1977 to 1979, there were also joyous times that kept us uplifted in spirit. Our son graduated from college with high honors (summa cum laude), joined an excellent accounting firm, and then married his high school sweetheart. Their visits in our home were especially uplifting times for Anissa.

Since our ministry of Logos Life and Light Foundation was legally established as a charitable 501(c)(3) organization on May 2, 1979, it was important for the public to have access to our meetings. This was good training for Anissa in learning to be quiet during meetings, besides giving her more social interaction.

As there was still no medical answer for the uncontrollable seizures Anissa experienced and was causing her health to noticeably deteriorate, my husband’s boss, Mr. Tom, showed up at our house one day with an Enquirer newspaper in his hand. (He had always held a special place in his heart for Anissa, who he called “Little Bits.” In earlier years, Mr. Tom received prayer with the laying-on-of-hands by several of us for his injured rotator cuff and was miraculously healed.) As I opened the door, to my surprise, in broken Italian-English, he, while pointing to the newspaper article, boldly said, “I pay — you take ‘Little Bits’ — this place for healing!” The place happened to be in Portugal, Spain and was about a woman claiming to be a psychic-healer. I was touched by the sincerity and kindness of his heart, but at the same time I knew it was contrary to the Word of God.

“There shall not be found among you anyone who makes his son or his daughter pass through the fire, or who practices witchcraft, or a soothsayer, or one who interprets omens, or a sorcerer, or one who conjures spells, or a medium, or a spiritist, or one who calls up the dead. For all who do these things are an abomination to the Lord and because of these abominations the Lord your God drives them out from before you. You shall be blameless before the Lord your God.”

Deuteronomy 18:10-13 NKJV

Mr. Tom & “Little Bits”/ Anissa

In the evening, after Mr. Tom’s visit that day, we attended a Full Gospel Men’s Fellowship Meeting where the leader asked everyone to write down his/her need for a word of guidance and place it on the prayer-offering plate being passed around. The moment I did so, a vision came before me of the United States “New England” area. I knew it was in answer to what I had written concerning the guidance needed pertaining to the Portugal trip, yet I had not a clue to what it meant.

The following morning while in prayer, the vision again appeared and I heard these words: “Go to New England this year – attend a healing service in that area – drive the car – blessings shall be yours – take this time away from others, but on a mission to save the lost, the weary and the sick – you shall conquer and your child shall bless this ministry of healing.”

The next day a brochure from the Apostolate of Healing, Father/Rev. Ralph A. DiOrio, Director, Leicester, MA, came in the mail with a Worcester Outreach Service Schedule (July – December, 1980) in it. After much prayer to discern the will of God and His timing, it came strongly for us to attend a service at the Worcester Memorial Auditorium, 09/13-14/80. This particular service required tickets for guaranteed seats. Since Mr. Tom was of the Catholic faith, I asked what he thought about transferring the trip offer for Portugal, to instead take Anissa to the Fr. DiOrio’s healing service in Massachusetts. He was in agreement, so we ordered tickets and planned our trip.

To this day, we have no idea how that brochure ever got in our mailbox.

How awesome it is when God intervenes with His Excellent Grace!

(The next post will continue the journey — stay tuned!)

To contact Anissa’s mother email blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #19 – “Pressing In Prayer For A Cure…”

It was after a period of time when our daughter, Anissa, was free of seizures and doing especially well that we felt encouraged, then things would change rather abruptly. Due to an unexpected attack upon her physical body, such as a sinus affliction or other communicable diseases — instead of improvements, seizures would begin to manifest.

Anissa – when unexpected affliction was present (above)

Anissa – when free of any unexpected affliction (above)

During one of these trying seasons of Anissa’s life, I was seeking God for an answer. While reading Psalm 80, verse 12 was quickened as an inward witness to my spirit. “Why hast thou then broken down her hedges, so that all they which pass by the way do pluck her?” Immediately, I thought of the Biblical account of how Satan, wanting to prove Job a hypocrite rather than a faithful man, questioned God for having made a hedge of protection around Job, his household and everything he owned.

Understanding the purposes of God can guard us against destructive attacks upon our faith. Job didn’t understand what was happening to him, but we have the advantage to recognize from his story that while God may allow one’s faith to be put to the test, there comes a time of restoration. I have learned that what we don’t understand, we are not to discard but should continue to ask for wisdom, seek for insight and understanding, and to knock for knowledge of the truth until victory comes.

“So the Lord blessed Job at the end of his life more than at the beginning.”

Job 42:12 TLB

God encourages us to demonstrate confidence in Him no matter whether we are in the midst of the broken hedge or a time of protection surrounded by the hedge. People may look towards a handicapped individual, searching for signs of improvement to build up one’s own faith as a result of their prayers for such a person. According to James 5:16, “The effectual fervent prayer of a righteous man availeth much.” It may not always be the healing at the time we want, but much can be availed in our own spiritual growth through obedience and commitment to pray.

“Pray about everything; tell God your needs and don’t forget to thank Him for His answers. If you do this you will experience God’s peace, which is far more wonderful than the human mind can understand. His peace will keep your thoughts and your hearts quiet and at rest as you trust in Christ Jesus.” Philippians 4:6-7 TLB

While attending a Camp Meeting in 1983, I had an opportunity to question a worldwide evangelist gifted with discerning of spirits, Dr. Lester Sumrall, about our faith and Anissa’s condition. He said, “This has to do with more than just your faith! God is working something out of this whole thing. This is physical and spiritual. Your daughter needs deliverance and healing, physically and mentally.”

That quickened word was instilled in my spirit and has been a sustaining force in my walk of faith as I seek a cure for Anissa of all types of seizures – another facet of

HIS EXCELLENT GRACE!

*Please submit your testimonies of God’s excellent grace in your life! We would love to share it with everyone. Send posts to blawyerlogos@bellsouth.net

To contact Anissa’s mother email blawyerlogos@bellsouth.net

To take a virtual tour of the healing center, go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #25 – Major Medical Decisions And Listening Prayer = Good Results.

As a follow up of yesterday’s Post #24 and the awesome experience I had in connection with “First Lady” Barbara Bush’s compassionate heart, my prayers now go out to her beloved family in feeling the loss of her gracious life.

“For we know that if our earthly house, this tent, is destroyed, we have a building from God, a house not made with hands, eternal in the heavens … therefore we are always confident, knowing that while we are at home in the body we are absent from the Lord. For we walk by faith, not by sight. We are confident … and well-pleased rather to be absent from the body and to be present with the Lord.”

2 Corinthians 5:1, 6-8 NKJV

Sometimes a lack of knowledge can cause those still living to suffer in their mortal body. After exhausting all pathways of treating the seizure activity in Anissa with anti-epilepsy drugs, we were advised to consider a surgical operation of her corpus callosum. This procedure, known as split-brain, would separate a broad band of nerve fibers that joins the two hemispheres of the brain to keep a seizure isolated and from spreading throughout her brain.

Upon hearing favorable reports from other parents who took their child for such an operation to the Augusta Medical Center in Georgia, we decided to take Anissa for an evaluation. In 1987, an appointment was made for her with the neurosurgeon, Dr. Donald King. (Since one of his patient’s story was in our book, Victorious Survivors, he had previously ordered 15 copies to share with others.) Therefore, Dr. King was sensitive to our need to work closely with a physician who is compassionate to our needs and willing to try various types of therapy. It was his opinion that Anissa would not be a good candidate for the corpus callosum surgery because of her combative behavior. He told us that in the meantime, he’d keep her name on his special list for any new experimental drug program that might be beneficial for the types of seizures she was having.

Because of the extreme behavior problems that Anissa experienced after the severe drug reaction just several months before, Dr. King prescribed Mellaril (thioridazine HCI), in minute doses, in hopes to correct her loud screaming, explosive excitability and impulsivity. After several doses, we realized she was making the same kind of “pointless” motions which had originally alerted us to the reaction she had at six months of age to the drug Phenergan. After researching the chemical makeup of those two drugs, we were shocked to learn that both contained the same antipsychotic component – phenothiazine, which should never be given to a child under two years of age! It was then we understood that Anissa’s brain suffered seizures as a result of the drug causing a chemical imbalance rather than structural damage.

“When wisdom enters your heart, and knowledge is pleasant to your soul, discretion will preserve you; understanding will keep you, to deliver you from the way of evil.” Proverbs 2:10-12 NKJV

This knowledge that I gained only made me more adamant in finding a formula that will counteract what that antipsychotic drug might have caused in the chemical balance of Anissa’s brain. Evidently, God wants the same results and could be the reason why we are recipients of “open doors – signs — wonders” through the power of His Excellent Grace.

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #28 – Medicine Shift – Watching All Things Work Together…

grace bridge

After the removal of Anissa’s wisdom teeth, the following year in June of 1993, she was approved for the experimental program to begin Felbatol (felbamate) therapy. She ended up having to go the least desirable way rather than embarking on the “compassionate” program, which we had preferred.

Then began the ordeal of withdrawal from her previous medications of Phenobarbitol, Valium, Tegretol and Tagamet. However, within a short period of time, the mental alertness that Anissa exhibited encouraged us to persevere through the rough times of “addictive” withdrawal symptoms. During a two-week period, she experienced 90 multi-type seizures that could easily have ended her life if left to fend for herself.

For accurate evaluation, the neurologist had also prescribed our purchase of a camcorder to video tape all the types of seizures manifested during a two-month period. Shortly thereafter, the videos were used in helping others to recognize various types of seizures, especially for caregivers who worked with such individuals. This, of course, was before people had access to the Internet — WOW! What a blessing it is!!!

After one month of only Felbatol therapy, Anissa was seizure-free for a consecutive period of 21 days – the first time in seven years to be free for more than one or two days per month. Since Felbatol was experimental, the drug company set regulations that required frequent blood tests and a specific dosage, stronger than was best for Anissa. Her digestive system became very irritated, unable to keep food or medicine down. Seizures returned and on October 4th, the neurologist said to get her immediately to the hospital.

After a five-hour wait in the hospital emergency room, she was given an injection of Reglan (metoclopramide) to counteract her violent upchucking and nausea. A positive side effect of Reglan was that shaking-palsy symptoms of Anissa’s head and upper torso stopped! (Normally, this drug can cause a side effect of tremors and lower the threshold for seizure activity, exactly the opposite of the effect it had on her.) She was then prescribed a very small dose of Reglan which gave her an excellent appetite and due to the cessation of the shaking, Anissa was once again able to feed herself. By the time of her next checkup, she had gained seven pounds within two months. Still, seizures were manifesting daily which required additional therapy.

Shortly after Anissa’s flare-up, Felbatol was approved by the FDA and became available through prescriptions. The neurologist was no longer required to comply with the “experimental drug” restriction and could reduce her dosage. Prior to Thanksgiving, at the onset of a family trip to West Virginia, a new regimen of drug therapy was begun, adding Valium (diazepam) to the Felbatol and Reglan.

“And we know that all things work together for good to them that love God, to them who are the called according to His purpose.”

Romans 8:28

The medication change caused Anissa to be in a more docile state that enabled some quality time with her grandparents. It had been over two years since we could visit with our family and grandchildren. A rare treat was being able to have Anissa join with us at a restaurant. We enjoyed first hand how things work together for good through the power of His Excellent Grace.

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #29 – Watching For The Next Open Door…

god closes 2

On August 1, 1994, the FDA recommended suspending use of the anti-seizure drug, Febatol (felbamate), since it had been linked to ten cases of aplastic anemia – a rare and often fatal condition. In many ways, Anissa appeared to be better on the drug but her neurologist did not feel it was worth the risk, so it was discontinued. Several new drugs had been released that looked promising for controlling seizures.

Neurontin (gabapentin) was added to Anissa’s medications, but after two weeks of the drug combination, it became evident that Neurontin was certainly not promising for her, so it was deleted. Her severe adverse reaction had created a series of seizures during which bloody saliva drained from her mouth. We thought she bit her tongue only to later discover that two left, lower molars had fractured and crumbled, breaking at the surface gum line.

Because of so many drugs taken to alleviate the seizures, one destructive side effect was the pitting of her teeth, which caused them to be fractured during a hard seizure. Not visible to the naked eye, decay had developed within the teeth. Because of Anissa’s need to be anesthetized, this required another trip to Shands Hospital. Praise God, we were blessed to have the same sweet dental surgeon and team as in 1992, when Anissa’s wisdom teeth were removed.

This time, she had four left molars extracted, along with five restorations. Her EEG showed none of the seizure activity that had previously been seen while she was deeply sedated. Therefore, we concluded that Felbatol must have had a positive effect in helping to control seizures. Anissa’s gums and mouth healed quickly, but evidently the chemical balance of the neurotransmitters in her brain was jolted from the anesthesia, as nothing seemed to work the same thereafter in controlling the seizures.

We have learned that when one door closes, God opens another door. Our hopes were next on a promising new drug, Lamictal (lamotrigine), that Anissa was scheduled to receive through the University Hospital at Gainesville, until we discovered it would require a lot of testing. We knew her frail condition could not tolerate such an ordeal, so we decided to wait until it was readily available.

IMG_1153[3461] Anissa - Frail '96

The following year, in May of 1995, an exam revealed that Anissa had an erosion of the opening into her stomach from the esophagus, causing many digestive upsets. Prilosec (omeprazole), corrected the condition but to our dismay, it caused a sequence of much harder and more dangerous seizures.

The drug, Lamictal, became readily available in October, of which Anissa was able to tolerate small doses without digestive upset. She reacted very similar to that of Felbatol concerning alertness. Her sleep became at least 90% better, as well as less seizure activity. However, when the dosage was increased, Lamictal caused greater tension in her muscles, she was unable to relax and suffered from nausea and reflux. In order to give Anissa the adequate dosage required for better seizure control, her anxiety level increased considerably, thus defeating the purpose. As with Felbatol, the ill side effects reduced the benefits.

During an appointment with the neurologist in Melbourne, Florida, he indicated that Anissa suffers from the “worst-case” type of seizure disorder. My response: “I sure would like to know more about the brain!” His quick reply: “So would I!”

Much of our learning has been by trial and error. Of course, we will not allow any drug with like components contained in Phenergan, such as the phenothiazines, to be used for Anissa. The adverse reaction she suffered from Neurontin and Gabitril (tiagabine), gives us cause to question drugs affecting the GABA receptor in her brain.

“Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.”

Philippians 4:6-7 NKJV

Patients such as Anissa are dependent upon decisions made by others. As legal guardian for the well-being of my daughter, prayer and a healthy diet is a necessity! Searching the Internet for any new therapy can also be helpful. But to persevere, it takes the guidance of the Holy Spirit and His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a tour of the healing center go to http://www.wellspringhealingretreat.org