Anissa’s Story – Post #25 – Major Medical Decisions And Listening Prayer = Good Results.

As a follow up of yesterday’s Post #24 and the awesome experience I had in connection with “First Lady” Barbara Bush’s compassionate heart, my prayers now go out to her beloved family in feeling the loss of her gracious life.

“For we know that if our earthly house, this tent, is destroyed, we have a building from God, a house not made with hands, eternal in the heavens … therefore we are always confident, knowing that while we are at home in the body we are absent from the Lord. For we walk by faith, not by sight. We are confident … and well-pleased rather to be absent from the body and to be present with the Lord.”

2 Corinthians 5:1, 6-8 NKJV

Sometimes a lack of knowledge can cause those still living to suffer in their mortal body. After exhausting all pathways of treating the seizure activity in Anissa with anti-epilepsy drugs, we were advised to consider a surgical operation of her corpus callosum. This procedure, known as split-brain, would separate a broad band of nerve fibers that joins the two hemispheres of the brain to keep a seizure isolated and from spreading throughout her brain.

Upon hearing favorable reports from other parents who took their child for such an operation to the Augusta Medical Center in Georgia, we decided to take Anissa for an evaluation. In 1987, an appointment was made for her with the neurosurgeon, Dr. Donald King. (Since one of his patient’s story was in our book, Victorious Survivors, he had previously ordered 15 copies to share with others.) Therefore, Dr. King was sensitive to our need to work closely with a physician who is compassionate to our needs and willing to try various types of therapy. It was his opinion that Anissa would not be a good candidate for the corpus callosum surgery because of her combative behavior. He told us that in the meantime, he’d keep her name on his special list for any new experimental drug program that might be beneficial for the types of seizures she was having.

Because of the extreme behavior problems that Anissa experienced after the severe drug reaction just several months before, Dr. King prescribed Mellaril (thioridazine HCI), in minute doses, in hopes to correct her loud screaming, explosive excitability and impulsivity. After several doses, we realized she was making the same kind of “pointless” motions which had originally alerted us to the reaction she had at six months of age to the drug Phenergan. After researching the chemical makeup of those two drugs, we were shocked to learn that both contained the same antipsychotic component – phenothiazine, which should never be given to a child under two years of age! It was then we understood that Anissa’s brain suffered seizures as a result of the drug causing a chemical imbalance rather than structural damage.

“When wisdom enters your heart, and knowledge is pleasant to your soul, discretion will preserve you; understanding will keep you, to deliver you from the way of evil.” Proverbs 2:10-12 NKJV

This knowledge that I gained only made me more adamant in finding a formula that will counteract what that antipsychotic drug might have caused in the chemical balance of Anissa’s brain. Evidently, God wants the same results and could be the reason why we are recipients of “open doors – signs — wonders” through the power of His Excellent Grace.

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #27 – Discerning Doctors…

Reaching the age of 25 was a victory for Anissa, especially considering how seizures had increased in volume and velocity. “Red tape” had blocked the release of Felbatol (felbamate), an anti-seizure drug for which she had been approved the previous year. Her neurologist hoped to obtain it as a “compassionate drug” rather than experimental, to avoid the strenuous testing otherwise required by the FDA, which could worsen Anissa’s frail condition.

Starting felbamate therapy was further delayed when it became apparent Anissa needed her wisdom teeth removed. This required general anesthesia with monitoring of seizures during the operation (x-rays, cleaning, extractions, etc.), which had to be done at Shands Hospital in Gainesville, Florida. Throughout the summer of 1992, we met with the four doctors in charge – an oral surgeon, pediatric dentist, anesthetist and neurologist. In order to keep Anissa strong enough to survive the operation, we took extra precautions, protecting her from colds and viruses. The timing of the operation was uncertain, due to coordinating the schedules of the doctors, but finally the date was set for November 18th.

Evidence of answered prayers occurred the day before surgery when all the preoperative tests were done from 8:30 a.m. until 5:00 p.m. Anissa had blood work, urinalysis, chest x-rays, several mouth exams, blood pressure and pulse rate, a general exam and lots of waiting, while sitting in a wheel chair the entire time. She did not have her regular naps, or receive her food and medication on schedule, yet only experienced one mild tonic seizure. She was very happy, peaceful and cooperative – truly a miracle!

angel over house

We knew Anissa was in good hands when Charlotte White, the oral surgeon, came out from the operating room to discuss with us what the x-rays and exam revealed: Anissa’s mouth was very healthy with no cavities, abscesses or gingivitis, but two of the wisdom teeth were impacted and the other two were shoving some teeth and could present future problems. Then, looking straight at us, Dr. White asked, “Are you Spirit-filled?” After receiving our affirmative answer, she replied, “So am I.” Another reason for the peace that passeth all understanding we were experiencing!

“For He [Christ Jesus] Himself is our peace, who has made both one, and has broken down the middle wall of division between us.”

Ephesians 2:14 NKJV

After the operation was over, Dr. White explained that gauze was placed in Anissa’s throat to prevent the blood from going into her stomach, as well as a special type of disintegrating sutures and gauze-like packing to alleviate dry sockets. She hoped it would keep Anissa from vomiting – and it did! Even with the strong anesthetic, her EEG showed seizure activity in the brain but she did not outwardly convulse.

During the following week, Anissa required one-on-one supervision night and day to restrain her hands from digging at her sore lips and gums. Puree foods were a steady diet for a season. At the final checkup, she was given a clean bill of health!

We survived the great challenge due to the many faithful intercessors keeping us in prayer before the Lord and overshadowed with His Excellent Grace.

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #29 – Watching For The Next Open Door…

god closes 2

On August 1, 1994, the FDA recommended suspending use of the anti-seizure drug, Febatol (felbamate), since it had been linked to ten cases of aplastic anemia – a rare and often fatal condition. In many ways, Anissa appeared to be better on the drug but her neurologist did not feel it was worth the risk, so it was discontinued. Several new drugs had been released that looked promising for controlling seizures.

Neurontin (gabapentin) was added to Anissa’s medications, but after two weeks of the drug combination, it became evident that Neurontin was certainly not promising for her, so it was deleted. Her severe adverse reaction had created a series of seizures during which bloody saliva drained from her mouth. We thought she bit her tongue only to later discover that two left, lower molars had fractured and crumbled, breaking at the surface gum line.

Because of so many drugs taken to alleviate the seizures, one destructive side effect was the pitting of her teeth, which caused them to be fractured during a hard seizure. Not visible to the naked eye, decay had developed within the teeth. Because of Anissa’s need to be anesthetized, this required another trip to Shands Hospital. Praise God, we were blessed to have the same sweet dental surgeon and team as in 1992, when Anissa’s wisdom teeth were removed.

This time, she had four left molars extracted, along with five restorations. Her EEG showed none of the seizure activity that had previously been seen while she was deeply sedated. Therefore, we concluded that Felbatol must have had a positive effect in helping to control seizures. Anissa’s gums and mouth healed quickly, but evidently the chemical balance of the neurotransmitters in her brain was jolted from the anesthesia, as nothing seemed to work the same thereafter in controlling the seizures.

We have learned that when one door closes, God opens another door. Our hopes were next on a promising new drug, Lamictal (lamotrigine), that Anissa was scheduled to receive through the University Hospital at Gainesville, until we discovered it would require a lot of testing. We knew her frail condition could not tolerate such an ordeal, so we decided to wait until it was readily available.

IMG_1153[3461] Anissa - Frail '96

The following year, in May of 1995, an exam revealed that Anissa had an erosion of the opening into her stomach from the esophagus, causing many digestive upsets. Prilosec (omeprazole), corrected the condition but to our dismay, it caused a sequence of much harder and more dangerous seizures.

The drug, Lamictal, became readily available in October, of which Anissa was able to tolerate small doses without digestive upset. She reacted very similar to that of Felbatol concerning alertness. Her sleep became at least 90% better, as well as less seizure activity. However, when the dosage was increased, Lamictal caused greater tension in her muscles, she was unable to relax and suffered from nausea and reflux. In order to give Anissa the adequate dosage required for better seizure control, her anxiety level increased considerably, thus defeating the purpose. As with Felbatol, the ill side effects reduced the benefits.

During an appointment with the neurologist in Melbourne, Florida, he indicated that Anissa suffers from the “worst-case” type of seizure disorder. My response: “I sure would like to know more about the brain!” His quick reply: “So would I!”

Much of our learning has been by trial and error. Of course, we will not allow any drug with like components contained in Phenergan, such as the phenothiazines, to be used for Anissa. The adverse reaction she suffered from Neurontin and Gabitril (tiagabine), gives us cause to question drugs affecting the GABA receptor in her brain.

“Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.”

Philippians 4:6-7 NKJV

Patients such as Anissa are dependent upon decisions made by others. As legal guardian for the well-being of my daughter, prayer and a healthy diet is a necessity! Searching the Internet for any new therapy can also be helpful. But to persevere, it takes the guidance of the Holy Spirit and His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #30 – Considering It All Joy…Even In Tribulation.

persevereing

On Anissa’s 29th birthday (1996), there was still no reprieve of seizures – frail in appearance, yet a strength that would always confound our human reasoning. Our desperate prayers for relief of the severe hyperventilation and hyperactivity that Anissa was experiencing day in and day out, caused us to search for a solution.

Research led us to a medical specialist in Miami who had considerable success in his practice using auriculotherapy, an electrical stimulation of the ear. An appointment was scheduled for Anissa. When the doctor performed this therapy on her, the hyper afflictions came to an immediate halt. Because the calming effect was so noticeable, the doctor recommended that we continue the therapy at home with a compact, state-of-the-art version of the machine. This unique instrument has a special probe to effectively detect and stimulate important nerve junctions in the body. Clinical studies reveal that it is capable of improving blood flow, thereby improving vitality, reducing pain and accelerating tissue healing.

In order to purchase the Stimplus instrument, I first had to learn the technique. That required my attending a two-day seminar near the Miami airport, where Anissa and her dad could enjoy a perfect view of air flight activity from our hotel room. After the hotel security guard was notified of loud voices coming from our room, he showed up at our door that night to check on things. Once he understood our predicament, we were told to try and keep the volume low. Oh, how many times we prayed for that very thing! Not wanting to disturb others, we knew that in the future there would have to either be a change with Anissa, stay at home or have a sound proof room.

The stimulator proved valuable to the wellness of our family – except for Anissa. The high-pitch beeping, (generated “automatically” by the portable version of the device), on the edge of her ear, created in her a sensitivity to the noise which she violently resisted. The large machine used by the physician in his office did not generate a noticeable noise, as it had a connecting line from the point of contact to the actual equipment located across the room. We were grateful of being able to experience first-hand the validity of auriculotherapy therapy. With Anissa, it is not mind over matter – it either does or does not work! Scientific research has proven that cranial electrical stimulation can be a safe, alternative method of healing. Since seizure activity is a type of electrical discharge in the brain, such stimulation must be regulated to avert negative results. At this present time, much research is being done with Deep Brain Stimulation which delivers controlled electrical pulses to a specific target in the brain.

“Therefore, having been justified by faith, we have peace with God through our Lord Jesus Christ, through whom also we have access by faith into this grace in which we stand, and rejoice in hope of the glory of God. And not only that, but we also glory in tribulations, knowing that tribulation produces perseverance; and perseverance, character; and character, hope. And hope does not disappoint, because the love of God has been poured out in our hearts by the Holy Spirit who was given to us.”

Romans 5:1-5 NKJV

With so many disappointments throughout the years, the main thing that keeps my hope alive is the Word of God and memories of His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #31 – God’s Silver Lining In The Midst Of Trials…

grace in trials

In February, 1997, an MRI scan of Anissa’s brain and upper spine was scheduled at Holmes Regional Hospital in Melbourne, Florida. The radiologist read the scan as normal; however, the neurologist thought there was a slight atrophy (shrinkage) of Anissa’s cerebellum. [Just recently I have learned that the anti-seizure medication, Tegretol (carbamazepine), which Anissa has taken since 1982, can cause atrophy of the cerebellum.] If so, this could possibly explain why previous remedies became futile. For example, we had taught her to say aloud, “head – stop shaking – Jesus name,” and her head would stop shaking. But then came the time when it no longer worked. We have learned that if the root cause is a physical malfunction, a therapeutic correction may be necessary before prayers are answered.

During that hospital visit, a nurse had given us the name of a dentist in the Palm Bay area who worked with patients like Anissa —“just in case we should sometime need a good dentist.” What a blessing that turned out to be! In September, one of Anissa’s molar teeth fractured due to a hard seizure and tightly clenched jaw. Because of the greater force and increase of seizures, it was again necessary to put her under general anesthesia for dental work.

At that time, there were no dentists in our area who would work on her teeth. It certainly was much less stressful going to the Palm Bay Hospital rather than Shands Hospital in Gainesville. Finally, on the day after Thanksgiving, the tooth was extracted. The doctor was “amazed” as to the excellent condition of Anissa’s overall oral hygiene for all she had been through. The restoration period from her oral surgery was more of a challenge this time. Within three days, she battled a cold and sinus infection that required antibiotic treatment for her total recovery.

Sinus flare-ups and headaches always seemed to be “a thorn in the flesh” that required medication to offset any major health problems for Anissa. Her neurologist had verified how “climate changes can affect seizure activity,” which we had noticed when sporadic temperature changes were drastic. As we questioned the doctor further, he explained that the changes involve the nervous system which, in turn, may trigger seizure activity. Looking back over the records of Anissa’s daily seizures, it is interesting to note that whenever she was on an antibiotic for any infectious condition, such as sinusitis, she would be almost completely free of seizures. The negative thing about that therapy – she would wind up with Candida, a yeast infection that required additional medicine, and to our dismay, more seizures.

After several weeks of waiting for a bill of service from the Palm Bay Hospital anesthesiologist, we finally got in touch with the one who performed the procedure to inquire why we hadn’t received a bill. He replied, “Because I didn’t send one!” He went on to explain how Anissa’s story deeply touched his heart.

“… the things which were sent from you, a sweet-smelling aroma, an acceptable sacrifice, well-pleasing to God. And my God shall supply all your need according to His riches in glory by Christ Jesus.”

Philippians 4:18-19 NKJV

We are so grateful for such giving and caring individuals who go beyond the call of duty – definitely an extension of His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #33 – Victory In The Trial…

joy in trials

After a two-year wait for the release of the anti-seizure drug Sabril (vigabatrin) for Anissa, it still was not available by 1999. It was suggested that we might want to consider trying Topamax (topiramate). We decided it wasn’t worth the risk since kidney stones were reported as one outstanding side effect. Remembering how her kidneys shut down when an infant due to the drug Phenergan, also, that she would have no way of telling us of any pain afflicted, attributed to our decision. We were told of one parent whose child was taking the drug, that although it helped curtail partial seizures, an increase of tonic-clonic seizures was noted.

Since Anissa had shown patterns of autistic behavior, she began undergoing tests in March, 1999, that qualified her to receive infusions of Secretin at the Autism Research Institute in Palm Bay, Florida. Jeff Bradstreet, M.D., was in charge of the research and also administered the Secretin infusions. Anissa responded in a very alert and positive way after the first treatment but then experienced an allergic reaction with the third IV.

Prior lab testing for Anissa had included Food Allergy IgE & IgG Analysis, Hormonal Evaluation Urine Organic Acid and Brain Protein Antibodies with a Serotonin evaluation. The Myelin Basic Protein Antibody test showed “positive” deterioration of the myelin sheath of nerve passageways in her brain, but MRI scans have never verified such. The doctor suggested that Anissa might be a candidate to receive an IV of Immunoglobulin. Since she would need anesthesia during a 24-hour period, such therapy could not be instituted.

There were many new anti-seizure medications being released during this period of time. Our hope was that each one would be the “miracle” drug we had been waiting for, but it did not prove to be so. On March 10, 2000, Anissa was prescribed Trileptol (oxcarbazepine) which caused a greater increase of seizure activity.

Then in September, Zonegran (zonisamide) was prescribed which seemed to affect a certain area of her brain that alleviated some seizures but limited the verbal ability to communicate and execute certain physical tasks. As in the past, when first starting a new drug, Anissa usually would have a positive reaction, but as the dosage builds up in her system, she reacts with more seizures. Zonegran proved to be no exception and in October she totaled over 350 jackknife with tonic type seizures. After cutting the dosage to half of the original prescribed amount, she experienced more seizure-free days that enabled her to take long walks. By mid-November she made it to ¼ mile. It had been 14 years since she was able to walk that distance.

“Beloved, do not think it strange concerning the fiery trial which is to try you,

as though some strange thing happened to you…” 1 Peter 4:12 NKJV

In January, 2001, Anissa weathered a siege of four fractured toes when her right foot forcefully slid under the bathroom door as she began to fall backwards. Since taking Zonegran, there had been a noticeable unsteadiness with her standing from time to time. She was an excellent patient but seizures were a challenge as we had to protect her foot from further damage for the bones to fuse correctly. After several months Anissa was able to resume her walks outdoors and soon our normal routine emerged.

We did not enjoy the “fiery trial” but were so thankful of prayer warriors petitioning God’s mercy and His Excellent Grace for our victory!

To contact Anissa’s Mother email her at blawyerlogos@bellsouth.net

To take a tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #34 – Trials & Errors Of The Journey…

trials

Our journey could be described as a course of ruling out any medication or alternative method that would not be beneficial to Anissa’s overall health, while at the same time alleviate the violent seizure activity.

In mid-April, 2002, we noticed a very strong metallic odor in Anissa’s breath and stools, as well as an abnormal hair loss and increased seizure activity. As a trial series for better seizure control, she had been taking the antibiotic, Biaxin (clarithromycin), 250mg daily for six months. It was noted that whenever Anissa had taken that medication in past years, even during a sickness, she would be almost seizure free. Biaxin can reduce the clearance of Tegretol, raising its levels. The strange thing is that whenever Tegretol would be given in a higher dosage, Anissa would only have more seizures, including digestive upset with acid reflux. The antacid, Tagamet (cimetidine), reacts in a similar way with Valium (diazepam).

“Happy – blessed, fortunate [enviable] – is the man who finds skillful and godly Wisdom, and the man who gets understanding—drawing it forth [from God’s Word and life’s experiences]. For the gaining of it is better than the gaining of silver, and the profit of it than fine gold.”

Proverbs 3:13-14 AMP

Anissa’s blood test revealed a toxic level of Tegretol, so it was reduced from 1200mg to 800mg and the Diazepam from 20mg to 12 ½ mg daily. By mid-June her drug level was normalized and hair loss stopped but the upset seemed to cause more violent complex seizures. Her mental development was at a standstill, but her physical health remained in excellent condition. The caregiver’s challenge became greater in protecting Anissa during the violent seizures. Throughout the years, the knowledge gained from that experience has alerted me to think “research” if such “symptoms” should arise.

It was during this difficult time that a non-invasive brain surgery using “gamma knife” was being conducted for certain types of epilepsy, but being non-verbal kept Anissa from being considered as a patient. The anti-seizure drug, Keppra (levetiracetam), was approved for partial complex seizures. Also, aromatherapy had been reported as being effective for certain people with epilepsy.

One news article stated: “In Birmingham, England, jasmine was shown to dramatically reduce the effects of epilepsy in one patient. All unconscious, dysfunctional electrical discharges of the brain, which occurred every ten seconds, totally stopped after a patient was administered aromatherapy using jasmine only two times.” After showing the article to Anissa’s neurologist, he said, “Why don’t you first try the aromatherapy and then you will have a true evaluation. I will give you a sample of Keppra to try later, if you want?” Of course, we agreed!

Since aromatherapy was not a familiar avenue of healing, my lack of knowledge and faith required more information. Here were the research facts discovered: (1) “Essential oils illicit an immediate olfactory response and they are readily absorbed into the bloodstream. The olfactory membrane is the only place in the human body where the central nervous system is exposed and in direct contact with the environment. When an olfactory receptor cell is stimulated, an impulse travels along the olfactory nerve to the limbic portion of the brain, where memory, hunger and emotion is evoked. Before consciously knowing we are in contact with an aroma, our subconscious mind has already received and reacted to it. (2) Jasmine is considered very antiseptic and can bring balance to hormonal changes or disruptions. Its powerful aroma indicates it should be used in small doses, never taken internally unless under the care of a doctor and should be used with great caution for infants since their nervous system is still being developed. (3) Epileptics often get what is called an ‘aura,’ a strange smell or taste of something that does not exist, just before a seizure. Olfactory hallucinations are a symptom of epilepsy [especially in the brain’s temporal lobe] … often leads to bizarre behaviors. (4) Sugar uptake increases during a seizure and falls below normal between seizures. (5) A recovering brain can increase its capacity to form new memories.”

Balance is very important for Anissa’s wellbeing so the Jasmine Essential Oil was first diffused with a vaporizer and later added to her bath water. Her response was favorable in helping to control the seizure activity, but there were still over 20 days in a month’s time that she experienced one or more seizures a day.

It definitely was an accurate report concerning the validity of aromatherapy, for which I am grateful to have learned. Having physicians willing to try new methods for seizure control in Anissa was the result of prayer and

His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreatorg

Anissa’s Story – Post #35 – Clear And Present Angels…

angel3

By February, 2003, having received a valid and favorable experience with the Jasmine Essential Oil therapy for Anissa, it seemed a good time to start her on the samples of Keppra, 250mg at bedtime, as prescribed. After the fourth dose, she began such profuse urination day and night that was injurious to her health because of dehydration, so the Keppra was discontinued. One month later, we again gave the drug another try, only to discover even worse side effects. Not only did Anissa have profuse urination but seizures multiplied into series of spells and the downhill progression began even though the drug was stopped. Over a period of six months, she would go three or four nights weekly without sleep. It was miraculous that she could even walk with the help of another person, as her fine motor skills and mental alertness had deteriorated immensely.

But to the amazement of all, Anissa continued to surprise us with miracle feats that uplifted our faith, giving us incentive to carry on during troublesome times.

anissa in bed

One evening (9-22-03), an exciting thing happened when Anissa wanted in bed. My husband took that opportunity to go fill our car with gas, so I decided it would be a good time to vacuum the bath and bedroom floor while keeping an eye on her. I swept under the hamper, lifted the scatter rug to sweep, put it down, turned to clean in the sink area and there came Anissa walking, holding her blanket in one hand. At first I thought her dad was in back of her and that I had just missed hearing him return, but then I noticed that his hands were not on her arms.

Momentarily stunned, I held onto the sweeper and said, “Where did you come from?” She looked absolutely normal and I will never forget the way she looked at me, as if to say, “Well, isn’t this what I’m supposed to do. I need to go to the potty.” I heard myself say aloud, “I can’t believe it, but I do believe it, because here you are!” Anissa had not walked without assistance for 17 years, nor has she done so since that day. She had shoved the railing out from her bed, walked over the sweeper hose and around many obstacles – making me to know that a Divine presence had charge over her. Then I remembered that several months earlier, while watching television, an evangelist/prophet had spoken that on this same day at 5:00, an angel would be dispatched to our home and to expect a miracle. That prophetic word was fulfilled to the minute – WOW!

“And you shall rejoice in all the good which the Lord your God has given

you and your household.”

Deuteronomy 26:11 AMP

Several weeks later, as my husband walked into the kitchen, he was thrilled when Anissa took notice and said, “Daddy!” Since then, others have noted how at times she looks intently at the person talking to her – something not done in the past. With autistic mannerisms, she had always seemed to be in her own little world, while at the same time be very much aware of words being spoken.

When her daddy suddenly passed on to Glory the following year, 12/19/04, everyone wondered how Anissa would cope and if she would miss his loving affection. During a six month period, it was noticeable how her countenance would light up when she heard certain male voices. She interacted more with men and intently studied their faces. At such times, God is the One who always filled any void in our lives with a greater abundance of His Excellent Grace.

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #36 – Survival By Prayer – In The Eye Of The Storm…

Little did we know how the perseverance over past years would prepare our faith to face even greater challenges in the year 2004. During January, a week of prayer was set forth at our ministry’s Wellspring of Life Retreat Center. The retreat involved many intercessors from churches and ministries seeking the Lord’s favor for miracle breakthroughs concerning brain and nervous system disorders. During that week, Anissa had only one mild seizure – considered miraculous since daily seizures had been the norm for her.

Previously, her neurologist had suggested we consider a Vagus Nerve Stimulator (VNS) implant for Anissa that could maybe lessen the severity of attacks. Because of the significant change for the better following that week of prayer, we did not pursue the VNS implant until later, in June, when seizures had returned with a vengeance. After the epileptologist at Shands Neurological Center had seen Anissa and studied her charts, he said, “You better get your group and preacher to pray for her again!” He informed us that, to his knowledge, the oldest person to live with Lennox Gastaut Syndrome was 28 years. At that time, Anissa was 37.

The epileptologist’s assistant happened to be present when Anissa experienced a very hard sequence of seizure activity: jackknife into tonic-clonic into psychomotor (complex partial) and myoclonic, so the assistant ran quickly to get the epileptologist. It was the only time in Anissa’s life that a doctor was present to see first-hand how devastating such spells can be and described the hard thrusting of her arms as “fencing” motions. Afterwards, the “odds” given by the doctor regarding the VNS implant were not favorable for the type of seizures that Anissa experiences, as well as her “self-mutilation” to any strange body sensation. Also, she would have a four to five day hospital stay for video documentation of seizure activity, MRI and other testing. With my husband’s restricted breathing and need of oxygen, I would have had to stay with Anissa. Considering all things, the doctor felt it was important to best follow our “gut” feeling.

Shortly thereafter, I heard a minister share the following: “One day a hunter came across a bear in the woods. ‘I want a full stomach,’ said the bear. ‘I want a fur coat,’ said the hunter. ‘Let’s compromise,’ suggested the bear – and promptly ate the man. As a result, the bear went away with a full stomach, and the man went away wrapped in fur.” This lesson became clear that if we parents/guardians do not protect our own health, we could all be eaten alive. So rather than compromise our overall health with more stress, we decided to wait.

The decision proved right when four hurricanes hit our area during August and September – certainly a “proving ground” of our faith. “Frances” was our most challenging because of no electricity for five days – “Charley” was three days. We were most grateful that no structural damage occurred with our house and the retreat center. The main thing we learned: Preparation and Preparation! Afterwards we wasted no time in purchasing a generator! In 90 degree+ heat, cold baths were shock therapy for all of us, but seemed to affect Anissa in a positive way with less seizures – or was the good effect due to so many prayers being offered on Florida’s behalf from around the world?

“We can rejoice, too, when we run into problems and trials for we know that they are good for us—they help us learn to be patient. And patience develops strength of character in us and helps us trust God more each time we use it until finally our hope and faith are strong and steady. Then, when that happens, we are able to hold our heads high no matter what happens and know that all is well, for we know how dearly God loves us, and we feel this warm love everywhere within us because God has given us the Holy Spirit to fill our hearts with His love.”

Romans 5:3-5 TLB

My hope and faith needed to be strong and steady when on 12/19/04, more stress took its toll in our lives. While my husband, Anissa’s “daddy”, was attending church that Sunday morning, with his tithe and offering in hand, he suddenly died of cardiac arrest, possibly triggered by his emphysema/COPD. All in all, it was a year never to be forgotten and believe me, any survival was totally dependent upon prayer, God and

His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #38 – The Silver Lining In God’s Plans…

silver lining

The beginning of 2006 was off to a very bumpy start for Anissa. After taking the prescribed medication, Lyrica (pregabalin), she could only tolerate a 50mg dosage due to stomach distress. The higher doses caused her greater mental confusion besides having a very negative effect in controlling seizures.

Upon hearing a speaker say, “A survivor is one who finds meaning in the suffering,” the following scripture describes a meaning for Anissa’s survival . . .

“We are always confident, knowing that while we are at home in the body we are absent from the Lord. For we walk by faith not by sight. We are confident, I say, and well-pleased rather to be absent from the body and to be present with the Lord. Therefore we make it our aim, whether present or absent, to be well-pleasing to Him.”

2 Corinthians 5:6-9 NKJV

Since Anissa enjoyed and prospered during many sleepless nights from special scenic videos with calming music, our ministry began a project to create a one-hour video geared for the profound, mentally challenged person. The acoustics at the retreat center was great for recording a Messianic Psalmist, whose gifted voice can soothe a troubled soul. And with the Lord’s provision of a multi-talented engineer supplying his computer knowledge, as well as audio equipment, the video was completed and has been a blessing to many.

DVD bev

CD bev

At the same time music therapy became recognized by the medical profession as a therapeutic treatment for dementia and other types of mentally challenged patients. The doctor prescribed such therapy for Anissa, so I video-taped each session. There were some very positive signs but the unpredictable seizures would divert her focus, besides creating an interference of schedules. As in years past, a positive program had to be suspended due to Lennox Gastaut Syndrome – the multiple seizure saga.

In May, one of Anissa’s teeth abscessed. Remembering those past grueling experiences in setting up visits with a pediatric dentist, anesthesiologist, neurologist and orthodontist at the University of Florida Hospital, as well as the tremendous expense of such, my prayers were fervent for a reprieve. After several appointments ended with negative results, finally, a brave and compassionate dental surgeon came to the rescue! He and his staff were so efficient and commendable in giving the IV sedation and extracting two of Anissa’s teeth that took less than one hour. Also, the fee was very favorable, saving us at least $7,000, which was the cost at UFH ten years earlier each time she was admitted.

Another miracle was how a couple, who worked with disabled persons, just happened to have a day off at their jobs and were going to be in our area. They were most willing to help and what a blessing it was!! Anissa healed rapidly and maintained excellent health for the remainder of that year – except for seizures.

Several months later, a vision came before me of a picture of Anissa’s face on the cover of her Book of Life – Revelations: 20:12 – with these words written:

ANISSA

CHILD OF DESTINY

CALLED BY GOD AS HER MOTHER’S HELPER

TO BUILD HIM A HEALING CENTER WITHOUT DRUGS

“For you see your calling, brethren that not many wise according to the flesh, not many mighty, not many noble, are called. But God has chosen the foolish things of the world to put to shame the wise, and God has chosen the weak things of the world to put to shame the things which are mighty; and the base things of the world and the things which are despised God has chosen, and the things which are not, to bring to nothing the things that are, that no flesh should glory in His presence. But of Him you are in Christ Jesus, who was made to us wisdom from God … that, as it is written, ‘He who glories, let him glory in the Lord.’”

1 Corinthians 1:26-31 NKJV

I have seen just how much God can achieve in using such weak things, according to His Word and by His Excellent Grace, so that He alone receives the Glory!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org