Anissa’s Story – Post #39 – A Great Trial Of Affliction…

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New searches still remained on our journey’s quest to find relief for the unrelenting seizure activity that Anissa experienced day in and day out.  In June, 2007, the doctor ordered an MRI scan of her brain. The scan showed slight atrophy of the cerebellum, which was considered very minor for her 40-year age, and that structurally, her brain appeared very healthy.  Again, it seemed to confirm the seizures were the result of a chemical imbalance that all began when the drug Phenergan was prescribed for her at six months of age. Since hospitals have a limit of keeping such records, I obtained the video to have for future comparison, if needed.  

During this time, I was made aware of David Perlmutter, M.D., FACN, a board-certified neurologist, recognized as a leader in the field of complementary medicine and his Health Center in Naples, Florida.   After reading his scientific articles published in the Journal of Neurosurgery and The Better Brain Book, a consultation with him seemed wise.  His suggestions were numerous before he viewed Anissa’s MRI.  He then witnessed firsthand of her having a full-blown multi-type seizure.  Afterwards, he ordered a comprehensive analysis of her blood which showed a slight deficiency of the antioxidant, Glutathione and her Lactobacilli was below optimal levels.  Otherwise, all tests were excellent, which could account for her physical wellness throughout the year.

To better understand the functions of what Anissa’s lab tests revealed as a deficiency, I did research.  One significant fact — Glutathione helps the liver to detoxify poisonous chemicals and is important for good immune system function.  Since L-cysteine supplements can raise glutathione levels, Dr. Perlmutter prescribed N-Acetyl Cysteine (NAC). As previously stated, when Anissa was prescribed NAC in 1997, her overall health improved – likewise, this time.

A probiotic containing lactobacillus acidophilus was added to her daily diet that improved her digestive system.  A valid test was conducted several times when she was without the supplement for over a week, to then have the old symptoms of digestive/bowel upset reappear.   Before probiotics became prominent, the choice was enzyme therapy for symptoms of digestive disturbance, but in order to replace proper flora of the gut, a good probiotic is needed.

Anissa’s physical health remained stable throughout the following year, until she had dental work on December 23, 2008, which required two teeth extractions.    Late on Christmas Day, her right cheek began to swell, indicating the need for antibiotic therapy. Evidently, the infection had interfered with the proper function of her brain.   At 5:00 the following morning, as I was helping her walk towards the bathroom, her upper torso moved forward while her feet stayed put. This caused Anissa, as well as “momma”, to suddenly plunge forward, thus projecting Anissa’s face forward onto the floor with me on top.

anissa clavicle

The fall struck Anissa’s left cheekbone and within several hours both sides of her face were affected with eyes swollen almost shut.  Very destructive type of seizures became more numerous and her incapacitated walking remained, but it was midnight before the evidence of a broken left clavicle [collarbone] surfaced.  Being the holidays, she had to be treated at the hospital’s ER. After x-rays of face, knee and shoulder, a restraint-type sling was provided and was a helpful blessing during the many daily hard seizures that followed.  

“For there is hope of a tree, if it be cut down, that it will sprout again, and that a tender branch thereof will not cease.  Though the root thereof wax old in the earth and the stock thereof dry in the ground, yet through the scent of water, it will bud and bring forth boughs like a plant.”

Job 14:7-9

For five months, it was 24/7 concentrated care with orthopedic visits and x-rays to make certain the clavicle bone adhered properly with no more protrusion.  Anissa’s recovery transpired in accordance with the Word of God and remained strong because of

His Excellent Grace.

To contact Anissa’s mother email blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

 

Anissa’s Story #42 – Times May Change – But God’s Word Remains…

The victories seen in 2012 had more to do with the ministry rather than Anissa, but both are intertwined.  Having experienced over 821 seizures that year, with 407 being the worse destructive kind, each lasting four to ten minutes, the stress factor hit a record high.  The amazing thing is how well she always looked and stayed physically strong — yet my hope for a miraculous change remained!

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Hopes for a change in 2013 concerning Anissa were high.  It began in January when I first learned about Fuel For Thought (MCT-Coconut Oil), which was proven to raise Ketones.  Anissa began two ounces daily but in order to keep a 24-hour balance, the dosage needed to be increased to four times daily.  In doing this, she developed a severe digestive disturbance and the dose had to be lowered to once a day. Even so, there remained a change in her alertness and recognition, as well as less allergies.  The autism characteristics were also miraculously altered, but no change in the seizure activity.

With the greater challenge in caring for Anissa 24/7, the Prayer Clinic open four days a week, and searching for a couple to oversee our retreat center, I was ready for the joyous breakthrough that came forth in June.  It was a definite answer to our fervent prayers when contact was made with Tom Winslow, an ordained minister for over 20 years, and wife Barbara, a Registered Nurse.  Since they were Directors of Pensacola Healing Rooms for seven years and Regional Directors of the International Association Southeastern Healing Rooms, we thought they might know of a responsible couple to oversee our healing center.  When they could not recall anyone who might be interested, I said, “What about you two?”  Tom sort of laughed as he mentioned about their plate being already full.  But God had other plans! After a time of fasting, with prayer and a commitment to know and do the Lord’s will, it became evident the Lord was calling them to be our new Directors.  

“You have not chosen Me, but I have chosen you and appointed you that you should go and bear fruit, and that your fruit should remain, that whatever you ask the Father in My name He may give you.”

 John 15:16 NKJV  

Within a month’s time, I heard a news report concerning magnetoencephalography or MEG Scan — an imaging technique that identifies brain activity and measures small magnetic fields produced in the brain to pinpoint the source of seizures.  After receiving word that Florida Hospital for Children in Orlando had the MEG Scan and was opening its doors to adults suffering with seizures, Anissa at age 46, was accepted and evaluated.  Without hesitating, the neurologist said: “She needs a corpus colostomy!  It may not alleviate all seizures, but it could lessen the severity of them.”  I was very disappointed when he said the scan would only be used during the surgery and not prior to an operation.   When I responded that a corpus colostomy [also called “split brain”] operation was not considered in the past due to her combatant behavior, the doctor looked at Anissa and said:  “Well, she’s no more than a zombie now!”  Shocked to hear such words, I asked if he had looked at the video previously sent to him.  When he answered in the negative, the nurse presented the video to him. He became more irritated when his computer refused to work properly.  I offered my camcorder that was already set to view, just in case there was a mishap during the consultation. He said that it wasn’t necessary and instructed the nurse to answer any questions concerning an operation, then he quickly exited the room.  The nurse suggested more prayer before making a decision. The following week, Anissa experienced some very combative episodes, plus an entire day of tonic seizures – the type referred to by the neurologist that may not be alleviated by the surgery. I wondered if it was God’s way of showing how difficult it could be after such a surgical procedure?

“Do not be deceived, my beloved brethren.  Every good gift and every perfect gift is from above, and comes down from the Father of lights, with whom there is no variation or shadow of turning.  Of His own will He brought us forth by the word of truth, that we might be a kind of first fruits of His creatures.” James 1:16-18 NKJV

It was during that time period when CNN had a special report regarding Charlotte’s Web, a constituent of marijuana/hemp with less THC and higher CBD, being used to control seizures in children with LGS.  Chief Medical Correspondent, Dr. Sanjay Gupta, hosted the program with special guest, Dr. Alan Shackelford, a Harvard trained physician and one of the nation’s foremost experts on medical marijuana.  After seeing a video of Anissa’s seizures and viewing her medical records, as well as reading her story, Dr. Shackelford wanted to personally meet her. As I prayed to know God’s will concerning the request, the Holy Spirit led me to Isaiah 43:21 “This people have I formed for myself; they shall show forth my praise.”  That Word gave me great peace of mind that I was going in the right direction.

The visitation was set up by Consumer Law Services.   Their firm worked in collaboration with expert physicians and to assist patients in determining whether they are complying with the Doctrine of Medical Necessity.   It was important to have a valid legal defense before using medical marijuana, also known as cannabis/CBD. On Sunday, December 15, 2013, Dr. Shackelford made a “house call”, along with the legal team, to see Anissa.   The doctor’s attitude greatly impressed me as to how he listened very carefully to every detail in my answering of his questions. Before the visit ended, I was privileged to pray with them and give each one a copy of Isaiah 43:21.   Since that day, it is my understanding that this doctor spends much of his time in Israel, working with a pharmaceutical company concerning the production of cannabis/CBD.  Their visit greatly encouraged me to pursue that open door to try the CBD with Anissa. In my heart, the faith I had was in the Lord’s pathway of healing for Anissa and not the CBD, so any success would depend upon the power of His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

  

 

Anissa’s Story – Post #44 – A Steady Diet Of Keeping The Balance…

Gods invitation

While experiencing various trials and errors for control of seizure activity in Anissa during the past year, it also brought more researching on my part.  As occurred in earlier years when the doctor prescribed a higher dose of the anti-seizure drug, Keppra, it happened again. There were more seizures, along with profuse urination, confusion and panic attacks.  Also, I discovered that Tegretol, which Anissa had taken since her teen years, and Banzel for seven years, are reported to cause atrophy of the cerebellum.

At the beginning of January, 2018, my hopes arose when Anissa had no seizures for six days, then wham-o, they returned with a vengeance!  At the end of the month, she was attacked with a viral flu that settled in her sinuses and bronchial area. On the first day of the attack, she experienced 16 hard seizures, but for the next 10 days Anissa had no sign of any – her longest period to be free in the past 25 years.

   No matter how much coughing, sneezing, congestion, lack of sleep, off schedule eating, etc., she never had even a symptom of a seizure.  To my way of thinking, I believed a miracle was taking place and she could be free for a lifetime – until the violent seizures returned. Upon discussing the situation with several doctors, there could be a scientific explanation.  When a virus invades a system, the brain is not exempt from an alteration of the chemical balance. In Anissa’s case the effect was positive. But, like the doctors said, who wants a viral flu to in turn get only a temporary reprieve of seizures!  While I agree, it certainly was a great help to have her free of seizures during that time of sickness. My faith seems to be stronger as a result of that experience.

“For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do.”  Ephesians 2:10 NIV

The latter part of March, I began supplementing Anissa’s diet with Beta Hydroxybutyrate (BHB), a Ketone Powder that could hopefully get her body into a state of ketosis.  Since she was never able to tolerate the high fat, low-carbohydrate Ketogenic Diet, nor withstand long periods of fasting which could induce ketosis, this supplement seemed ideal.  BHB salts has 12,000mg in one scoop, composed of Sodium beta-hydroxybutyrate 1190mg, Calcium beta-hydroxybutyrate 690mg and Magnesium beta-hydroxybutyrate 315mg.  All of the ingredients seemed perfect for Anissa’s optimum health.  It has been noted that Beta Hydroxybutyrate can cross different important barriers to be able to be turned into energy at all times.  One of those barriers is the brain, which seems to know to let it in, creating a heightened mental acuity.  Whether ketosis is taking place can be checked by using special urine test strips such as Ketostix.  Also, the breath may have an acetone odor.    

Just two weeks after Anissa began taking the supplement, a news bulletin was published by the Citizens United for Research in Epilepsy.   It stated:  “Thomas Sutula, M.D., Ph.D., and his team found that the administration of 2-Deoxy-D-Glucose (2DG), following a traumatic brain injury can significantly reduce the subsequent development of post-traumatic epilepsy in a rodent model.”  Since Anissa has experienced so many blows to the head due to seizures, I researched the composition of 2DG to compare it with the BHB supplement.

Basically, they seemed identical in performance.  It let me know that I was on the right track in the time of experimentation with my daughter.  After being on the BHB for one week, she had LAB Testing done.  It was perfect – first time ever since she was born.  Seizure activity remained but the duration of the worse kind that lasted 9 to 12 minutes was shortened, lasting 2 to 3 minutes.  I kept her on the BHB supplement for just two months.   Hopefully, the positive change will remain stable until God fully perfects Anissa’s brain from ALL seizure activity by His Excellent Grace!

Note:  Now that I am in a waiting period with Anissa, it’s a perfect time to share your personal testimony of His Excellent Grace on our Guest Post for others to see.  Glorify God!

Submit your story to blawyerlogos@bellsouth.net or mail to Logos Life & Light Foundation, Inc., P.O. Box 1732, Ormond Beach, FL 32175

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org